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The Universal Data Collection (UDC) system
  • Published Date:
    3/22/11
  • Language:
    English
Filetype[PDF - 272.27 KB]


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  1. Report on the Universal Data Collection Program : includes data collected from April 2003 through September 2005 : a special report on children under two years of age in UDC
    Corporate Author:
    National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Hereditary Blood Disorders.
    Published:
    July 2006
    Source:
    UDC : the Universal Data Collection Program ; v. 8, no. 1
    Series:
    UDC : the Universal Data Collection Program
    Description:
    This issue of the UDC Surveillance Report is a special report that focuses on data collected from children under two years of age (babies) who have been enrolled through September 2005. Data collection on this group began its pilot phase in April 200...
    File Type:
    Filetype[PDF - 225.73 KB]
  2. Report on the Universal Data Collection Program : includes data collected from May 1998 through December 2004
    Corporate Author:
    National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Hereditary Blood Disorders.
    Published:
    July 2005
    Source:
    UDC : the Universal Data Collection Program ; v. 7, no. 1
    Series:
    UDC : the Universal Data Collection Program
    Description:
    The purpose of this surveillance report is to disseminate the information being collected by UDC to public health workers, health educators and planners, other care providers, and patients in the bleeding disorders community. The report contains info...
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  3. Report on the Universal Data Collection Program : includes data collected from January 2005 through December 2009
    Corporate Author:
    National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Blood Disorders.
    Published:
    January 2014
    Description:
    In 1975, Congress initiated federal funding to specialized hemophilia treatment centers (HTCs) to provide comprehensive care to people with bleeding disorders. In 1983, the Centers for Disease Control and Prevention (CDC) developed programs for peopl...
    File Type:
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    Complications of haemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System
    Personal Author:
    KULKARNI, R.; PRESLEY, R. J.; LUSHER, J. M.; SHAPIRO, A. D.; GILL, J. C.; MANCO-JOHNSON, M.; KOERPER, M. A.; ABSHIRE, T. C.; DIMICHELE, D.; HOOTS, W. K.; MATHEW, P.; NUGENT, D. J.; GERAGHTY, S.; EVATT, B. L.; SOUCIE, J. M.;
    Published:
    Nov 04 2016
    Source:
    Haemophilia. 23(2):207-214.
    Description:
    Aim : To describe the prevalence and complications in babies ≤2 years with haemophilia. : Methods : We used a standardized collection tool to obtain consented data on eligible babies aged ≤2 years with haemophilia enrolled in the Centers for Dise...
    Public Access
    Available on:
    March 01, 2018
  5. Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database
    Personal Author:
    Puetz, John; Soucie, J. Michael; Kempton, Christine L.; Monahan, Paul E.;
    Corporate Author:
    Hemophilia Treatment Center Network (HTCN) Investigators
    Published:
    Jul 16 2013
    Source:
    Haemophilia. 20(1):25-31.
    Description:
    Background : Several risk factors for inhibitors have recently been described for hemophilia A. It has been assumed that similar risk factors are also relevant for hemophilia B, but there is limited data to confirm this notion. : Objectives : To dete...
    File Type:
    Filetype[PDF - 210.14 KB]