Use of Complementary and Alternative Medicine by Males With Duchenne or Becker Muscular Dystrophy

Details

• Alternative Title:
  J Child Neurol
• Personal Author:
  Nabukera, Sarah K. ; Romitti, Paul A. ; Campbell, Kimberly A. ; Meaney, F. John ; Caspers, Kristin M. ; Mathews, Katherine D. ; Hockett Sherlock, Stacey M. ; Puzhankara, Soman ; Cunniff, Christopher ; Druschel, Charlotte M. ; Pandya, Shree ; Matthews, Dennis J. ; Ciafaloni, Emma
• Corporate Authors:
  MD STARnet
• Description:
  Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy was examined using interview reports from caregivers enrolled in the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. Of the 200 caregivers interviewed, 160 (80%) reported "ever" using complementary and alternative medicine for their affected children. Mind-body medicine (61.5%) was most frequently used, followed by biologically based practices (48.0%), manipulative and body-based practices (29.0%), and whole medical systems (8.5%). Caregivers reporting use of whole medical systems had higher education and income levels compared with nonusers; affected males had shorter disease duration. Caregivers reporting use of mind-body medicine, excluding aquatherapy, had higher education level compared with nonusers. Overall, complementary and alternative medicine use was high; disease duration, education, and income levels influenced use. These findings have implications for developing clinical care protocols and monitoring possible interactions between complementary and alternative medicine and conventional medical therapies.
• Keywords:
  Adult Becker Caregivers Complementary And Alternative Medicine Complementary Therapies Duchenne Humans Interview, Psychological Male Middle Aged Muscular Dystrophy Muscular Dystrophy, Duchenne Population Surveillance Retrospective Studies

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• Source:
  J Child Neurol. 27(6):734-740
• Pubmed ID:
  22156783
• Pubmed Central ID:
  PMC5882202
• Document Type:
  Journal Article
• Funding:
  U01 DD000189/DD/NCBDD CDC HHSUnited States/ ; U01DD000189/DD/NCBDD CDC HHSUnited States/
• Volume:
  27
• Issue:
  6
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:0343685f91bbf4ce8ae0c2ce7423523a512e5718c48d89c79d2d9a8a8f3495c0
• Download URL:
  https://stacks.cdc.gov/view/cdc/53023/cdc_53023_DS1.pdf
• File Type:
  [PDF - 230.78 KB ]