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Factors influencing time to case registration for youth with type 1 and type 2 diabetes: SEARCH for Diabetes in Youth Study
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  • Corporate Authors:
    for the SEARCH for Diabetes in Youth Study Group
  • Pubmed ID:
  • Pubmed Central ID:
  • Description:

    The development of a sustainable pediatric diabetes surveillance system for the United States requires a better understanding of issues related to case ascertainment.


    Using the SEARCH for Diabetes in Youth registry, we examined whether time from diabetes diagnosis to case registration differed by diabetes type, patient demographics, and the type of provider reporting the case to the study. Plots for time from diagnosis to registration were developed, and differences by key variables were examined using the log-rank test.


    Compared with time to registration for type 1 cases, it took 2.6 (95% confidence interval [CI], 2.5–2.6) times longer to register 50% of type 2 diabetes cases, and 2.3 (95% CI, 2.0–2.5) times longer to register 90% of type 2 cases. For type 1 diabetes cases, a longer time to registration was associated with older age, minority race/ethnicity, and cases, where the referring provider was not an endocrinologist. For type 2 diabetes cases, older age, non-Hispanic white race/ethnicity, and cases reported by providers other than an endocrinologist took longer to identify and register.


    These findings highlight the need for continued childhood diabetes surveillance to identify future trends and influences on changes in prevalence and incidence.

  • Document Type:
  • Collection(s):
  • Funding:
    P30 DK057516/DK/NIDDK NIH HHS/United States
    U01 DP000247/DP/NCCDPHP CDC HHS/United States
    U18 DP002710/DP/NCCDPHP CDC HHS/United States
    U01 DP000245/DP/NCCDPHP CDC HHS/United States
    M01 RR000069/RR/NCRR NIH HHS/United States
    U18 DP002714/DP/NCCDPHP CDC HHS/United States
    U01 DP000248/DP/NCCDPHP CDC HHS/United States
    M01 RR000037/RR/NCRR NIH HHS/United States
    U01 DP000244/DP/NCCDPHP CDC HHS/United States
    CC999999/Intramural CDC HHS/United States
    UL1 RR029882/RR/NCRR NIH HHS/United States
    U18 DP002709/DP/NCCDPHP CDC HHS/United States
    UL1 TR000077/TR/NCATS NIH HHS/United States
    U01 DP000250/DP/NCCDPHP CDC HHS/United States
    U01 DP000246/DP/NCCDPHP CDC HHS/United States
    U01 DP000254/DP/NCCDPHP CDC HHS/United States
    U18 DP002708/DP/NCCDPHP CDC HHS/United States
    HIR 10-001/HX/HSRD VA/United States
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