Twenty years of pediatric diabetes surveillance: what do we know and why it matters

Details

• Alternative Title:
  Ann N Y Acad Sci
• Personal Author:
  Dabelea, Dana ; Sauder, Katherine A. ; Jensen, Elizabeth T. ; Mottl, Amy K. ; Huang, Alyssa ; Pihoker, Catherine ; Hamman, Richard F. ; Lawrence, Jean ; Dolan, Lawrence M. ; Agostino, Ralph D’ ; Wagenknecht, Lynne ; Mayer-Davis, Elizabeth J. ; Marcovina, Santica M.
• Corporate Authors:
  for the SEARCH for Diabetes in Youth Study
• Description:
  SEARCH for Diabetes in Youth (SEARCH) was initiated in 2000 as a multicenter study to address major gaps in the understanding of childhood diabetes in the United States. An active registry of youth diagnosed with diabetes at age <20 years since 2002 assessed prevalence, annual incidence, and trends by age, race/ethnicity, sex, and diabetes type. An observational cohort nested within the population-based registry was established to assess the natural history and risk factors for acute and chronic diabetes-related complications, as well as the quality of care and quality of life of children and adolescents with diabetes from diagnosis into young adulthood. SEARCH findings have contributed to a better understanding of the complex and heterogeneous nature of youth-onset diabetes. Continued surveillance of the burden and risk of type 1 and type 2 diabetes is important to track and monitor incidence and prevalence within the population. SEARCH reported evidence of early diabetes complications highlighting that continuing the long-term follow-up of youth with diabetes is necessary to further our understanding of its natural history and to develop the most appropriate approaches to primary, secondary, and tertiary prevention of diabetes and its complications. This review summarizes two decades of research and suggests avenues for further work.
• Subjects:
  Adolescent Child Child, Preschool Diabetes Complications Diabetes Mellitus, Type 1 Diabetes Mellitus, Type 2 Epidemiological Monitoring Humans Incidence Infant Observational Studies As Topic Prevalence Registries United States

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• Keywords:
  Epidemiology Health Disparities Surveillance Type 1 Diabetes Type 2 Diabetes Youth
• Source:
  Ann N Y Acad Sci. 1495(1):99-120
• Pubmed ID:
  33543783
• Pubmed Central ID:
  PMC8282684
• Document Type:
  Journal Article
• Funding:
  P30 DK057516/DK/NIDDK NIH HHSUnited States/ ; UC4 DK108173/DK/NIDDK NIH HHSUnited States/ ; U18 DP002710/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP006134/DP/NCCDPHP CDC HHSUnited States/ ; UL1 TR000154/TR/NCATS NIH HHSUnited States/ ; U18 DP002714/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000244/DP/NCCDPHP CDC HHSUnited States/ ; P30 DK57516/Barbara Davis Center at the University of Colorado at Denver/ ; UL1 TR000062/TR/NCATS NIH HHSUnited States/ ; DP-10-001/CC/CDC HHSUnited States/ ; U01 DP000250/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP002708/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000247/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP006131/DP/NCCDPHP CDC HHSUnited States/ ; the Children with Medical Handicaps program managed/ ; U18 DP006138/DP/NCCDPHP CDC HHSUnited States/ ; UL1 Tr001450/TR/NCATS NIH HHSUnited States/ ; U01 DP000248/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP006136/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP002709/DP/NCCDPHP CDC HHSUnited States/ ; U18 DP006133/DP/NCCDPHP CDC HHSUnited States/ ; NH/NIH HHSUnited States/ ; UL1 TR001425/TR/NCATS NIH HHSUnited States/ ; Kaiser Foundation Health Plan/ ; U18 DP006139/DP/NCCDPHP CDC HHSUnited States/ ; South Carolina Clinical &amp; Translational Research Institute/ ; UL1 TR000077/TR/NCATS NIH HHSUnited States/ ; DP-05-069/CC/CDC HHSUnited States/ ; UL1 TR00423/Seattle Children's Hospital and the University of Washington/ ; R01 DK127208/DK/NIDDK NIH HHSUnited States/ ; UL1 TR000423/TR/NCATS NIH HHSUnited States/ ; U01 DP000246/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000254/DP/NCCDPHP CDC HHSUnited States/
• Volume:
  1495
• Issue:
  1
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha-512:668cb344873bac354a66a512989bfefd90c4755fedccee13838d3c621c2b96ef87e7ad2e1642e4801eb6c322ddf13e04687b4a9c1658fbf7db4fe777310fee13
• Download URL:
  https://stacks.cdc.gov/view/cdc/118711/cdc_118711_DS1.pdf
• File Type:
  [PDF - 863.89 KB ]