Confirming Mortality in a Longitudinal Exposure Cohort: Optimizing National Death Index Search Result Processing

Details

• Personal Author:
  Brackbill RM ; Cone, James E. ; Farfel MR ; Giesinger I ; Li J ; Qiao B ; Takemoto E
• Description:
  Purpose: The National Death Index (NDI) is an important resource for mortality ascertainment. Methods selected to process NDI search results are rarely described in studies using linked data and can have an impact on resources and mortality ascertainment. We evaluate methods to process NDI search results among a 9/11-exposed cohort-the World Trade Center Health Registry (Registry). Methods: We describe three approaches to process search results (NDI-recommended cutoff points [NDIc]; National Program of Cancer Registries [NPCR] algorithm, and modified National Institute of Occupational Safety and Health algorithm [mNIOSH]). We calculate percent agreement, positive predictive value, sensitivity, specificity, and quantify the burden of manual review to compare the approaches. Results: Of 51,158 Registry enrollees submitted for linkage, 9449 enrollee-level and 17,909 record-level matches were identified. NPCR and mNIOSH were highly concordant (97.1%); more record pairs required manual review for mNIOSH (mNIOSH: 2.7% and NPCR: 1.8%). NDIc sensitivity was 82.9%, with differences observed by race and ethnicity (Asian: 74.4% and White: 86.1%). Conclusions: NPCR algorithm minimized false matches and reduced the manual review burden. NDIc had nonrandom distribution of missed matches and low sensitivity. NDI search processing methods have important implications for resulting linked data; measures of linkage quality should be available to data users. [Description provided by NIOSH]
• Subjects:
  Cohort Studies Epidemiology Mortality Occupational Health Safety September 11 Terrorist Attacks
• Keywords:
  Algorithms Author Keywords: Mortality Cancer Registries Cohort Studies Longitudinal Study Mortality Data National Death Index Process Linkage Output Statistical Quality Control Vital Statistics World Trade Center WTC

  More +
• ISSN:
  1047-2797
• Document Type:
  Text
• Funding:
  Cooperative Agreement
• Genre:
  Journal Article
• Place as Subject:
  New York ; OSHA Region 2
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Topic:
  Workplace Safety & Health
• Location:
  North America
• Pages in Document:
  40-46
• Volume:
  56
• NIOSHTIC Number:
  nn:20068164
• Citation:
  Ann Epidemiol 2021 Apr; 56:40-46
• Contact Point Address:
  Jiehui Li, New York City Department of Health and Mental Hygiene, World Trade Center Health Registry, 42-09 28th Street, CN-6W, Long Island City, NY 11101
• Email:
  jli3@health.nyc.gov
• Federal Fiscal Year:
  2021
• Performing Organization:
  New York City Health/Mental Hygiene
• Peer Reviewed:
  True
• Start Date:
  20090430
• Source Full Name:
  Annals of Epidemiology
• End Date:
  20260630
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:c1157d0c5a095a6dc8d7f516f50073d3b2864c26994d16fcbab7c455141a88f5178771859062ca425d968514c4426175ed9f6aa3822665c097dda0707bb7b60d
• Download URL:
  https://stacks.cdc.gov/view/cdc/230376/cdc_230376_DS1.pdf
• File Type:
  [PDF - 319.94 KB ]