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An international survey of attitudes of medical geneticists toward mass screening and access to results.
  • Published Date:
    1989 Jan-Feb
  • Source:
    Public Health Rep. 104(1):35-44
  • Language:
    English
Filetype[PDF-1.86 MB]


Details:
  • Alternative Title:
    Public Health Rep
  • Personal Author:
  • Description:
    A survey on mass screening was sent to 1,053 medical geneticists in 18 nations, of whom 677 responded. Three theoretical screening situations were proposed, screening in the workplace for genetic susceptibility to work-related disease, carrier screening for cystic fibrosis, and presymptomatic testing for Huntington disease. Of the respondents, 72 percent thought screening in the workplace should be voluntary, and 81 percent said employers should have no access without the worker's consent, including 22 percent who believed that employers should have no access at all. There was strong consensus in all but one nation that insurance companies should have no access to test results without the worker's consent, and strong consensus in two countries that they should have no access at all. Most (82 percent) believed that screening for cystic fibrosis should be applied to the entire population, but 18 percent believed that it should be applied primarily to Caucasians. In all, 66 percent of respondents believed that individuals at risk for Huntington disease should be told their test results only if they say that they wish to know, recognizing a "right not to know" whether they will develop the disease in later life. Twelve percent thought that spouses should have access to test results if they asked, and 26 percent thought that spouses should be informed of results even if they did not ask. Geneticists in all nations were vividly aware of the potential damage from third party access to results, especially access by insurance companies. They had little sympathy with insurers' needs to assess actuarially accurate premiums.

  • Subject:
  • Pubmed ID:
    2522232
  • Pubmed Central ID:
    PMCnull
  • Document Type:
    Journal Article
  • Collection(s):
    Public Health Reports
  • Main Document Checksum:
  • Supporting Files:
    No Additional Files
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      Wolfson, F
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):99-100
      File Type:
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    2. A prospective study of reproductive, familial and socioeconomic risk factors for breast cancer using NHANES I data.
      Personal Author:
      Carter, C L; Jones, D Y; Schatzkin, A; Brinton, L A;
      Published Date:
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      Source:
      Public Health Rep. 104(1):45-50
      Description:
      Risk factors for breast cancer in a cohort of women who participated in the first National Health and Nutrition Examination Survey (NHANES) and its followup epidemiologic survey were examined. The analytic cohort consisted of 122 breast cancer cases ...
      File Type:
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    3. Project Outreach: Organizations Unified to Reach Youth.
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      Dunnington, B C; Hayes, M L;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):79-82
      Description:
      Youths of today are forced to deal with the external pressures of alcohol and drug abuse on all levels-from the older youngsters across the street pressuring them to be "cool," to the "cute dog" enticing them with the glamour of being the original "p...
      File Type:
      Filetype[PDF - 778.23 KB]
    4. A price index for biomedical research and development.
      Personal Author:
      Holloway, T M; Reeb, J S;
      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
      Price changes of goods and services used in biomedical research and development have important effects on the costs of conducting research. We summarize the trends suggested by a recently constructed biomedical research and development price index, w...
      File Type:
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    5. A comparison of the childhood health status of normal birth weight and low birth weight infants.
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      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
      We analyzed previously unavailable data to describe the national health status in 1981 of noninstitutionalized children who were low birth weight infants. They were compared with normal birth weight children. All data contained in the analysis were b...
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    6. PROGRAMS, PRACTICES, PEOPLE
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):101-104
      File Type:
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    7. Developing strategies for AIDS prevention research with black and Hispanic drug users.
      Personal Author:
      Schilling, R F; Schinke, S P; Nichols, S E; Zayas, L H; Miller, S O; Orlandi, M A; Botvin, G J;
      Published Date:
      1989 Jan-Feb
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      Public Health Rep. 104(1):2-11
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      More than 8 of 10 intravenous drug users infected with the human immunodeficiency virus (HIV) are black or Hispanic. Recognizing that sociocultural factors affect HIV transmission, public health officials have called for interventions designed for et...
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    8. New year and still on course--developing goals for the year 2000.
      Personal Author:
      Windom, R E
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):1
      File Type:
      Filetype[PDF - 162.25 KB]
    9. Exposure to toxic waste sites: an investigative approach.
      Personal Author:
      Stehr-Green, Paul A.; Lybarger, Jeffrey A.;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):71-74
      Description:
      Improper dumping and storage of hazardous substances and whether these practices produce significant human exposure and health effects are growing concerns. A sequential approach has been used by the Centers for Disease Control and the Agency for Tox...
      File Type:
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    10. Public Health Rep ; v. 104, no. 1 : table of contents
      Published Date:
      Jan-Feb 1989
      Source:
      Public Health Rep. 104(1)
      File Type:
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    11. Students teaching AIDS to students: addressing AIDS in the adolescent population.
      Personal Author:
      Haven, G G; Stolz, J W;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):75-79
      Description:
      Adolescents are at high risk for developing acquired immunodeficiency syndrome (AIDS) because of their sexual curiosity and exploration, drug experimentation, and lack of knowledge. At present, the only way to reduce this risk is through education. I...
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    12. Baby bottle tooth decay in Native American children in Head Start centers.
      Personal Author:
      Broderick, E; Mabry, J; Robertson, D; Thompson, J;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):50-54
      Description:
      Baby bottle tooth decay is a unique pattern of dental caries (tooth decay) affecting the dentition of young children. It is associated with the practice of putting the child to sleep with a nursing bottle filled with liquid that contains sugar. Pract...
      File Type:
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    13. Public Health Rep ; v. 104, no. 1 : Masthead
      Published Date:
      Jan-Feb 1989
      Source:
      Public Health Rep. 104(1)
      File Type:
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    14. The presence-absence coliform test for monitoring drinking water quality.
      Personal Author:
      Rice, E W; Geldreich, E E; Read, E J;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):54-58
      Description:
      The concern for improved monitoring of the sanitary quality of drinking water has prompted interest in alternative methods for the detection of total coliform bacteria. A simplified qualitative presence-absence test has been proposed as an alternate ...
      File Type:
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    15. Simple analytic procedures for rapid microcomputer-assisted cluster surveys in developing countries.
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      Published Date:
      1989 Jan-Feb
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      Personal Author:
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      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
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      Published Date:
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      File Type:
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    18. Public Health Reports ; v. 104 , no. 1 : cover
      Published Date:
      Jan-Feb 1989
      Source:
      Public Health Rep 104 (1)
      File Type:
      Filetype[PDF - 500.44 KB]
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