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An international survey of attitudes of medical geneticists toward mass screening and access to results.
  • Published Date:
    1989 Jan-Feb
  • Source:
    Public Health Rep. 104(1):35-44
  • Language:
    English
Filetype[PDF-1.86 MB]


Details:
  • Alternative Title:
    Public Health Rep
  • Personal Author:
  • Description:
    A survey on mass screening was sent to 1,053 medical geneticists in 18 nations, of whom 677 responded. Three theoretical screening situations were proposed, screening in the workplace for genetic susceptibility to work-related disease, carrier screening for cystic fibrosis, and presymptomatic testing for Huntington disease. Of the respondents, 72 percent thought screening in the workplace should be voluntary, and 81 percent said employers should have no access without the worker's consent, including 22 percent who believed that employers should have no access at all. There was strong consensus in all but one nation that insurance companies should have no access to test results without the worker's consent, and strong consensus in two countries that they should have no access at all. Most (82 percent) believed that screening for cystic fibrosis should be applied to the entire population, but 18 percent believed that it should be applied primarily to Caucasians. In all, 66 percent of respondents believed that individuals at risk for Huntington disease should be told their test results only if they say that they wish to know, recognizing a "right not to know" whether they will develop the disease in later life. Twelve percent thought that spouses should have access to test results if they asked, and 26 percent thought that spouses should be informed of results even if they did not ask. Geneticists in all nations were vividly aware of the potential damage from third party access to results, especially access by insurance companies. They had little sympathy with insurers' needs to assess actuarially accurate premiums.

  • Subject:
  • Pubmed ID:
    2522232
  • Pubmed Central ID:
    PMCnull
  • Document Type:
    Journal Article
  • Collection(s):
    Public Health Reports
  • Main Document Checksum:
  • Supporting Files:
    No Additional Files
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      Wolfson, F
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):99-100
      File Type:
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      Personal Author:
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      Published Date:
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      Source:
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      Description:
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      File Type:
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    3. Project Outreach: Organizations Unified to Reach Youth.
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      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
      Youths of today are forced to deal with the external pressures of alcohol and drug abuse on all levels-from the older youngsters across the street pressuring them to be "cool," to the "cute dog" enticing them with the glamour of being the original "p...
      File Type:
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      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
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      File Type:
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    5. PROGRAMS, PRACTICES, PEOPLE
      Published Date:
      1989 Jan-Feb
      Source:
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      File Type:
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      1989 Jan-Feb
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      Source:
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      File Type:
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      Published Date:
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      Public Health Rep. 104(1)
      File Type:
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      Haven, G G; Stolz, J W;
      Published Date:
      1989 Jan-Feb
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      Description:
      Adolescents are at high risk for developing acquired immunodeficiency syndrome (AIDS) because of their sexual curiosity and exploration, drug experimentation, and lack of knowledge. At present, the only way to reduce this risk is through education. I...
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      Personal Author:
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      Published Date:
      1989 Jan-Feb
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      Published Date:
      1989 Jan-Feb
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      Description:
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      Published Date:
      1989 Jan-Feb
      Source:
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      Description:
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      Personal Author:
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      Published Date:
      1989 Jan-Feb
      Source:
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      Personal Author:
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      Published Date:
      1989 Jan-Feb
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      Broderick, E; Mabry, J; Robertson, D; Thompson, J;
      Published Date:
      1989 Jan-Feb
      Source:
      Public Health Rep. 104(1):50-54
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    16. Public Health Rep ; v. 104, no. 1 : Masthead
      Published Date:
      Jan-Feb 1989
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      Published Date:
      Jan-Feb 1989
      Source:
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      Published Date:
      1989 Jan-Feb
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      Description:
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