Details:

Alternative Title:
J Womens Health (Larchmt)
Personal Author:
Peipins, Lucy A. ; Rodriguez, Juan L. ; Hawkins, Nikki A. ; Soman, Ashwini ; White, Mary C. ; ... More +
Peipins, Lucy A. ; Rodriguez, Juan L. ; Hawkins, Nikki A. ; Soman, Ashwini ; White, Mary C. ; Hodgson, M. Elizabeth ; DeRoo, Lisa A. ; Sandler, Dale P. Less -
Description:
Introduction

Women facing complex and uncertain situations such as cancer in their families may seek information from a variety of sources to gain knowledge about cancer risk and reduce uncertainty. We describe and assess the relative importance of information sources about familial breast cancer at the individual, family, and healthcare provider levels influencing women’s reporting they had enough information to speak with daughters about breast cancer. This outcome we refer to as being informed about breast cancer.

Materials and Methods

Sister Study participants, a cohort of women with a family history of breast cancer, were surveyed on family cancer history, family communication, social support, and interactions with healthcare providers (n = 11,766). Adjusted percentages and 95% confidence intervals for being informed about breast cancer versus not being informed were computed for individual-, family-, and provider-level characteristics in three steps using multivariate logistic regression models.

Results

We found 65% of women reported being informed about breast cancer while 35% did not. Having a trusted person with whom to discuss cancer concerns, having a lower versus higher perceived risk of breast cancer, having undergone genetic counseling, and being satisfied with physician discussions about breast cancer in their families were predictors of being informed about breast cancer.

Conclusions

Although acquiring objective risk information, such as through genetic counseling, may contribute to a basic level of understanding, communication with providers and within other trusted relationships appears to be an essential component in women’s reporting they had all the information they need to talk with their daughters about breast cancer.


Subject:
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Adult Aged Aged, 80 And Over Article Breast Cancer Breast Neoplasms Communication Family Communication Female Genetic Counseling Genetic Predisposition To Disease Humans Information Management Middle Aged Nuclear Family Oncology Physician-Patient Relations Risk Communication Risk Factors Self Report Social Support Surveys And Questionnaires Genetic Counseling
Source:
J Womens Health (Larchmt). 27(5):630-639
Pubmed ID:
29377785
Pubmed Central ID:
PMC5955805
Document Type:
Journal Article
Funding:
CC999999/ImCDC/Intramural CDC HHS/United States ; Z01 ES044005/ES/NIEHS NIH HHS/United States
CC999999/ImCDC/Intramural CDC HHS/United States ; Z01 ES044005/ES/NIEHS NIH HHS/United States Less -
Collection(s):
CDC Public Access
Main Document Checksum:
[+]
urn:sha256:db3f8278ea169c36ff90640297301ffe0d8d5f4219facb3635d057ef0bed4efc
Download URL:
https://stacks.cdc.gov/view/cdc/54139/cdc_54139_DS1.pdf
File Type:

Supporting Files

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