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Factors Associated with Mobility Outcomes in a National Spina Bifida Patient Registry
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Dec 2015
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Source: Am J Phys Med Rehabil. 94(12):1015-1025.
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Alternative Title:Am J Phys Med Rehabil
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Description:Objective
To provide descriptive data on ambulatory ability and muscle strength in a large cohort of individuals with spina bifida enrolled in a National Spina Bifida Patient Registry (NSBPR) and to investigate factors associated with ambulatory status.
Design
Cross-sectional analysis of data from a multi-site patient registry
Results
Descriptive analysis of mobility variables for 2604 individuals with spina bifida age 5 and above are presented from 19 sites in the United States. Analysis of a subset of NSBPR data from 380 individuals from three sites accompanied by data from a specialized spina bifida electronic medical record revealed that those with no history of a shunt, lower motor level, and no history of hip or knee contracture release surgery were more likely to be ambulatory at the community level than at the household or wheelchair level.
Conclusion
This study is the first to examine factors associated with ambulatory status in a large sample of individuals with myelomeningocele and non-myelomeningocele subtypes of SB. Results of this study delineate the breadth of strength and functional abilities within the different age groups and subtypes of SB. The results may inform clinicians of the characteristics of those with varying ambulatory abilities.
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Pubmed ID:26488146
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Pubmed Central ID:PMC5533185
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