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Survivorship Care Experiences and Information and Support Needs of Oral and Oropharyngeal Cancer Patients
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Jan 20 2016
Source: Head Neck. 38(Suppl 1):E1935-E1946. -
Alternative Title:Head Neck
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Description:Background
There is little research documenting the post-treatment experiences and needs of oral/oropharyngeal cancer survivors.
Methods
In this cross-sectional study, 92 patients diagnosed with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.
Results
About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common: One-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common: Only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.
Conclusions
Survivors reported the desire for more oral cancer information. A desire for assistance was less common.
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Subject:
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Pubmed ID:26788714
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Pubmed Central ID:PMC4844877
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