Survivorship Care Experiences and Information and Support Needs of Oral and Oropharyngeal Cancer Patients
Published Date:Jan 20 2016
Source:Head Neck. 38(Suppl 1):E1935-E1946.
Pubmed Central ID:PMC4844877
Funding:HHSN261201300021C/CA/NCI NIH HHS/United States
P30 CA072720/CA/NCI NIH HHS/United States
U58 DP003931/DP/NCCDPHP CDC HHS/United States
There is little research documenting the post-treatment experiences and needs of oral/oropharyngeal cancer survivors.
In this cross-sectional study, 92 patients diagnosed with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.
About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common: One-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common: Only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.
Survivors reported the desire for more oral cancer information. A desire for assistance was less common.
You May Also Like: