Survivorship Care Experiences and Information and Support Needs of Oral and Oropharyngeal Cancer Patients

Details

• Alternative Title:
  Head Neck
• Personal Author:
  Manne, Sharon ; Hudson, Shawna V. ; Baredes, Soly ; Stroup, Antoinette ; Virtue, Shannon Myers ; Paddock, Lisa ; Kalyoussef, Evelyne
• Description:
  Background
  
  There is little research documenting the post-treatment experiences and needs of oral/oropharyngeal cancer survivors.
  
  Methods
  
  In this cross-sectional study, 92 patients diagnosed with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.
  
  Results
  
  About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common: One-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common: Only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.
  
  Conclusions
  
  Survivors reported the desire for more oral cancer information. A desire for assistance was less common.
  
  
• Subjects:
  Adult Aged Cross-Sectional Studies Female Health Services Needs And Demand Humans Male Middle Aged Neoplasm Recurrence, Local Oropharyngeal Neoplasms Surveys And Questionnaires Survivors Survivorship

  More +
• Keywords:
  Information Needs Oral Cancer Survivors Post-treatment Care Support Needs Survivorship Care Plan
• Source:
  Head Neck. 38(Suppl 1):E1935-E1946
• Pubmed ID:
  26788714
• Pubmed Central ID:
  PMC4844877
• Document Type:
  Journal Article
• Funding:
  HHSN261201300021C/CA/NCI NIH HHSUnited States/ ; P30 CA072720/CA/NCI NIH HHSUnited States/ ; U58 DP003931/DP/NCCDPHP CDC HHSUnited States/
• Volume:
  38
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:b04bbf9ae5f330a4d0c129c70445a773a713e1d4d36dde20cd6cd6fef8c6f60d
• Download URL:
  https://stacks.cdc.gov/view/cdc/42109/cdc_42109_DS1.pdf
• File Type:
  [PDF - 192.56 KB ]