Details:

Alternative Title:
Prog Community Health Partnersh
Publisher's site:
http://dx.doi.org/10.1353/cpr.2012.0037
Personal Author:
McKee, Michael ; Thew, Denise ; Starr, Matthew ; Kushalnagar, Poorna ; Reid, John T. ; ... More +
McKee, Michael ; Thew, Denise ; Starr, Matthew ; Kushalnagar, Poorna ; Reid, John T. ; Graybill, Patrick ; Velasquez, Julia ; Pearson, Thomas Less -
Description:
Background

Numerous publications demonstrate the importance of community-based participatory research (CBPR) in community health research, but few target the Deaf community. The Deaf community is understudied and underrepresented in health research despite suspected health disparities and communication barriers.

Objectives

The goal of this paper is to share the lessons learned from the implementation of CBPR in an understudied community of Deaf American Sign Language (ASL) users in the greater Rochester, New York, area.

Methods

We review the process of CBPR in a Deaf ASL community and identify the lessons learned.

Results

Key CBPR lessons include the importance of engaging and educating the community about research, ensuring that research benefits the community, using peer-based recruitment strategies, and sustaining community partnerships. These lessons informed subsequent research activities.

Conclusions

This report focuses on the use of CBPR principles in a Deaf ASL population; lessons learned can be applied to research with other challenging-to-reach populations.


Subject:
[+]
Article
Communication
Cooperative Behavior
Health Services Research
Health Status Disparities
Humans
Peer Group
Persons With Hearing Impairments
Sign Language
Socioeconomic Factors
Trust

Source:
Prog Community Health Partnersh. 6(3):321-329.
Pubmed ID:
22982845
Pubmed Central ID:
PMC3576694
Document Type:
Journal Article
Funding:
K01 HL103140/HL/NHLBI NIH HHS/United States ; K01 HL103140-01/HL/NHLBI NIH HHS/United States ; T32 HL007937/HL/NHLBI NIH HHS/United States ; U48 DP000031/DP/NCCDPHP CDC HHS/United States ; U48 DP001910/DP/NCCDPHP CDC HHS/United States
K01 HL103140/HL/NHLBI NIH HHS/United States ; K01 HL103140-01/HL/NHLBI NIH HHS/United States ; T32 HL007937/HL/NHLBI NIH HHS/United States ; U48 DP000031/DP/NCCDPHP CDC HHS/United States ; U48 DP001910/DP/NCCDPHP CDC HHS/United States Less -
Place as Subject:
United States
Collection(s):
CDC Public Access
Main Document Checksum:
[+]
urn:sha256:a43febbf21c6a0affd00739171017520fe8a5e62cc20cf1759a0f06967729a7f
File Type:

Supporting Files

• 	nihms439571.nxml	txt
  	nihms439571f1.gif	gif
  	nihms439571f1.jpg	jpeg
  	nihms439571f2.gif	gif
  	nihms439571f2.jpg	jpeg

More +