Engaging the Deaf American Sign Language Community: Lessons From a Community-Based Participatory Research Center

McKee, Michael; Thew, Denise; Starr, Matthew; Kushalnagar, Poorna; Reid, John T.; Graybill, Patrick; Velasquez, Julia; Pearson, Thomas

doi:10.1353/cpr.2012.0037

Back to Previous Page

- Add this to...
- Twitter
- Facebook
- Google Bookmarks
- LinkedIn

Engaging the Deaf American Sign Language Community: Lessons From a Community-Based Participatory Research Center

Published Date:

2012

Publisher's site:

http://dx.doi.org/10.1353/cpr.2012.0037 New Site Icon

Source:

Prog Community Health Partnersh. 6(3):321-329.

[PDF - 1.55 MB]

Details:

Personal Authors:

McKee, Michael ; Thew, Denise ; Starr, Matthew ; Kushalnagar, Poorna ; Reid, John T. ; ... More ▼

Keywords:

[+]

Pubmed ID:

22982845

Pubmed Central ID:

PMC3576694

Description:

Background

Numerous publications demonstrate the importance of community-based participatory research (CBPR) in community health research, but few target the Deaf community. The Deaf community is understudied and underrepresented in health research despite suspected health disparities and communication barriers.

Objectives

The goal of this paper is to share the lessons learned from the implementation of CBPR in an understudied community of Deaf American Sign Language (ASL) users in the greater Rochester, New York, area.

Methods

We review the process of CBPR in a Deaf ASL community and identify the lessons learned.

Results

Key CBPR lessons include the importance of engaging and educating the community about research, ensuring that research benefits the community, using peer-based recruitment strategies, and sustaining community partnerships. These lessons informed subsequent research activities.

Conclusions

This report focuses on the use of CBPR principles in a Deaf ASL population; lessons learned can be applied to research with other challenging-to-reach populations.

Document Type:

Journal Article

Collection(s):

CDC Public Access

Funding:

K01 HL103140/HL/NHLBI NIH HHS/United States
K01 HL103140-01/HL/NHLBI NIH HHS/United States
T32 HL007937/HL/NHLBI NIH HHS/United States
U48 DP000031/DP/NCCDPHP CDC HHS/United States
U48 DP001910/DP/NCCDPHP CDC HHS/United States

Supporting Files:

nihms439571.nxml	text/plain
nihms439571f1.gif	image/gif
nihms439571f1.jpg	image/jpeg
nihms439571f2.gif	image/gif
nihms439571f2.jpg	image/jpeg

No Related Documents.

You May Also Like:

Perceptions of Cardiovascular Health in an Underserved Community of Deaf Adults Using American Sign Language

Personal Author:

McKee, Michael; Schlehofer, Deirdre; Cuculick, Jessica; Starr, Matthew; Smith, Scott; Chin, Nancy P.;

Published:

May 14 2011

Source:

Disabil Health J. 4(3):192-197.

Description:

Background : Cardiovascular disease leads in overall mortality and morbidity in the United States. Cardiovascular disparities remain high among minority and underserved groups. Deaf American Sign Language (ASL) users are an underserved and understudi...

File Type:

[PDF - 45.89 KB]
Experiences and Lessons Learned in Using Community-Based Participatory Research to Recruit Asian American Immigrant Research Participants

Personal Author:

Katigbak, Carina; Foley, Meghan; Robert, Lauren; Hutchinson, M. Katherine;

Published:

Feb 02 2016

Source:

J Nurs Scholarsh. 48(2):210-218.

Description:

Purpose : By 2050, the number of international migrants is expected to double from 214 million people. Of these, Asian immigrants are projected to comprise the largest foreign-born population in the United States by the year 2065. Asian American immi...

File Type:

[PDF - 73.45 KB]
Flexible Roles for American Indian Elders in Community-Based Participatory Research

Personal Author:

Whitewater, Shannon; Reinschmidt, Kerstin M.; Kahn, Carmella; Attakai, Agnes; Teufel-Shone, Nicolette I.;

Published:

Jun 02 2016

Source:

Prev Chronic Dis. 13.

Description:

Community-based participatory research builds partnerships between communities and academic researchers to engage in research design, decision making, data collection, and dissemination of health promotion initiatives. Community-based participatory p...

File Type:

[PDF - 252.85 KB]
Developing and Conducting a Dissertation Study through the Community-Based Participatory Research Approach

Personal Author:

Nadimpalli, S.B.; Van Devanter, N.; Kavathe, R.; Islam, N.;

Published:

Dec 8 2015

Source:

Pedagogy Health Promot. 2(2):94-100.

Description:

The community-based participatory research (CBPR) approach has been shown to be innovative and effective in conducting research with communities experiencing health disparities. Doctoral nursing students, and other doctoral students in the health sci...

File Type:

[PDF - 65.71 KB]
Is Community-Based Participatory Research Possible?

Personal Author:

Blumenthal, Daniel S.

Published:

Mar 2011

Source:

Am J Prev Med. 2011; 40(3):386-389.

Description:

The researcher seeking guidance in conducting research that is truly community-participatory may fınd too much guidance rather than too little and must recognize that his or her project will be evaluated not only on the quality of the science, but o...

File Type:

[PDF - 35.07 KB]