A National Profile of Tourette Syndrome, 2011–2012

Details

• Alternative Title:
  J Dev Behav Pediatr
• Personal Author:
  Bitsko, Rebecca H. ; Holbrook, Joseph R. ; Visser, Susanna N. ; Mink, Jonathan W. ; Zinner, Samuel H. ; Ghandour, Reem M. ; Blumberg, Stephen J.
• Description:
  Objective ; To provide recent estimates of the prevalence of Tourette Syndrome among a nationally representative sample of US children, and to describe the association of Tourette Syndrome with indicators of health and functioning. ; Method ; Data on 65,540 US children aged 6–17 years from the 2011–2012 National Survey of Children s Health were analyzed. Parents reported whether a health care provider had ever told them their child had Tourette Syndrome or other neurobehavioral or chronic health conditions, and whether their child had current Tourette Syndrome. ; Results ; Based on parent report, 0.19% of US children had Tourette Syndrome; the average age of diagnosis was 8.1 years. Children with Tourette Syndrome, compared to those without, were more likely to have co-occurring neurobehavioral and other health conditions, meet criteria for designation as having a special health care need, receive mental health treatment, have unmet mental health care needs and have parents with high parenting aggravation and parents who were contacted about school problems; they were less likely to receive effective care coordination or have a medical home. After controlling for co-occurring neurobehavioral conditions, the findings on parents being contacted about school problems and children having unmet mental health care needs were no longer significant. ; Conclusion ; TS is characterized by co-occurring neurobehavioral and other health conditions, and poorer health, education and family relationships. The findings support previous recommendations to consider co-occurring conditions in the diagnosis and treatment of Tourette Syndrome. Future research may explore whether having a medical home improves outcomes among children with Tourette Syndrome.
• Keywords:
  • Epidemiology
  • prevalence
  • health care
  • comorbidity
  • parenting
  • Adolescent
  • Child
  • Cross-Sectional Studies
  • Female
  • Health Status
  More +
• Source:
  J Dev Behav Pediatr. 35(5):317-322
• Pubmed ID:
  24906033
• Pubmed Central ID:
  PMC4484726
• Document Type:
  Journal Article
• Funding:
  CC999999/Intramural CDC HHSUnited States/
• Volume:
  35
• Issue:
  5
• Download URL:
  https://stacks.cdc.gov/view/cdc/31875/cdc_31875_DS1.pdf
• File Type:
  [PDF - 174.63 KB]
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:56596059f2e4d6b917d4f5d0a4f424a2a7ed6ff103febe85ce8b8604dda2ca49