Shared Decision-Making among Caregivers and Health Care Providers of Youth with Type 1 Diabetes

Details

• Alternative Title:
  J Clin Psychol Med Settings
• Personal Author:
  Valenzuela, Jessica M. ; Smith, Laura B. ; Stafford, Jeanette M. ; Andrews, S. ; D’Agostino, Ralph B. ; Lawrence, Jean M. ; Yi-Frazier, Joyce P. ; Seid, Michael ; Dolan, Lawrence M.
• Description:
  The present study aimed to examine perceptions of shared decision-making (SDM) in caregivers of youth with type 1 diabetes (T1D). Interview, survey data, and HbA1c assays were gathered from caregivers of 439 youth with T1D aged 3-18 years. Caregiver-report indicated high perceived SDM during medical visits. Multivariable linear regression indicated that greater SDM is associated with lower HbA1c, older child age, and having a pediatric endocrinologist provider. Multiple logistic regression found that caregivers who did not perceive having made any healthcare decisions in the past year were more likely to identify a non-pediatric endocrinologist provider and to report less optimal diabetes self-care. Findings suggest that youth whose caregivers report greater SDM may show benefits in terms of self-care and glycemic control. Future research should examine the role of youth in SDM and how best to identify youth and families with low SDM in order to improve care.
• Subjects:
  Adolescent Age Factors Caregivers Child Child, Preschool Communication Decision Making Diabetes Mellitus, Type 1 Female Health Personnel Humans Male Patient Participation Professional-Family Relations Self Care Socioeconomic Factors

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• Keywords:
  Communication Patient Participation Shared Decision-making Type 1 Diabetes
• Source:
  J Clin Psychol Med Settings. 21(3):234-243
• Pubmed ID:
  24952739
• Pubmed Central ID:
  PMC4135709
• Document Type:
  Journal Article
• Funding:
  U18DP002708/DP/NCCDPHP CDC HHSUnited States/ ; UL1TR000154/TR/NCATS NIH HHSUnited States/ ; P30 DK057516/DK/NIDDK NIH HHSUnited States/ ; 1U18DP002709/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000247/DP/NCCDPHP CDC HHSUnited States/ ; U48/CCU419249/PHS HHSUnited States/ ; UL1 TR000154/TR/NCATS NIH HHSUnited States/ ; U18 DP002714/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000248/DP/NCCDPHP CDC HHSUnited States/ ; U48/CCU919219/PHS HHSUnited States/ ; P30 DK57516/DK/NIDDK NIH HHSUnited States/ ; UL1 TR00423/TR/NCATS NIH HHSUnited States/ ; U48/CCU519239/PHS HHSUnited States/ ; U18DP002710-01/DP/NCCDPHP CDC HHSUnited States/ ; UL1 RR029882/RR/NCRR NIH HHSUnited States/ ; UL1 TR001082/TR/NCATS NIH HHSUnited States/ ; UL1 TR000077/TR/NCATS NIH HHSUnited States/ ; UL1 TR000423/TR/NCATS NIH HHSUnited States/ ; U01 DP000250/DP/NCCDPHP CDC HHSUnited States/ ; HIR 10-001/HX/HSRD VAUnited States/ ; U18 DP002710/DP/NCCDPHP CDC HHSUnited States/ ; U18DP002714/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000245/DP/NCCDPHP CDC HHSUnited States/ ; DP-05-069/DP/NCCDPHP CDC HHSUnited States/ ; DP-10-001/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000244/DP/NCCDPHP CDC HHSUnited States/ ; U58CCU919256/PHS HHSUnited States/ ; U18DP000247-06A1/DP/NCCDPHP CDC HHSUnited States/ ; U58/CCU019235-4/PHS HHSUnited States/ ; U18 DP002709/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000246/DP/NCCDPHP CDC HHSUnited States/ ; U01 DP000254/DP/NCCDPHP CDC HHSUnited States/ ; UL1 RR026314/RR/NCRR NIH HHSUnited States/ ; U18 DP002708/DP/NCCDPHP CDC HHSUnited States/ ; UL1RR029882/RR/NCRR NIH HHSUnited States/
• Volume:
  21
• Issue:
  3
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:8028c35ac84d1ab706e63a4665fcab679af6c31dd4368d7d2a5a1b5b2ec56dc7
• Download URL:
  https://stacks.cdc.gov/view/cdc/30083/cdc_30083_DS1.pdf
• File Type:
  [PDF - 152.82 KB ]