Centers for Disease Control and Prevention Tribal Listening Session on Facilitating Data Sharing for HIV, Viral Hepatitis, Sexually Transmitted Diseases, and Tuberculosis Programs - March 31, 2026: Summary

Details

• Alternative Title:
  2026 NCHHSTP Data Sharing Listening Session Summary Report
• Corporate Authors:
  National Center for HIV, Viral Hepatitis, STD, and Tuberculosis Prevention (NCHHSTP) (U.S.) ; Centers for Disease Control and Prevention (CDC) (U.S.)
• Description:
  NCHHSTP is updating its 2011 Data Security and Confidentiality Guidelines for HIV, Viral Hepatitis, STD, and TB1 programs to reflect new and evolving data systems and technologies and to better address partner needs. To support this effort, CDC convened a virtual Tribal Listening Session on March 31, 2026, to collect feedback directly from tribal nations, tribal epidemiology centers (TECs), and tribal-serving organizations, that is, organizations that provide assistance and resources to tribes, about their experiences with data sharing. The feedback provided by respondents focused on practical challenges, effective engagement practices, tribal governance considerations, and factors influencing decisions to participate in data-sharing arrangements. Insights from this discussion will guide updates to the revised guidance that acknowledge tribal sovereignty and strengthen public health partnerships.
• Subjects:
  American Indian Or Alaska Native Confidentiality Data Anonymization Data Collection Hepatitis, Viral, Human HIV Indigenous Peoples Information Dissemination Population Surveillance Public Health Surveillance Sexually Transmitted Diseases Tuberculosis

  More +
• Keywords:
  Data Sharing
• Series:
  Tribal Affairs
• Publisher:
  Centers for Disease Control and Prevention (CDC) (U.S.)
• Document Type:
  Text
• Genre:
  Transcript
• Place as Subject:
  Tribal Nations, North America
• Rights:
  Public Domain
• CIO:
  National Center for HIV, Viral Hepatitis, STD, and Tuberculosis Prevention (NCHHSTP)
• Pages in Document:
  7 pdf pages
• Collection(s):
  Public Health Resources
• Main Document Checksum:
  urn:sha-512:ac17d2cc832e51eadecd27a10c29a5c9d38fdcf7273b7a71d44b2122ba35c7ebcb6c9eab4ab46ca8b7d2a585c96b76d3a4dfb93f9d45c88319bbb1010e8b19c9
• Download URL:
  https://stacks.cdc.gov/view/cdc/257169/cdc_257169_DS1.pdf
• File Type:
  [PDF - 149.46 KB ]