Policy on Public Health Research and Nonresearch Data Management and Access: CDC-GA-2005-14: Updated 2026/01/26

Details

• Alternative Title:
  CDC Data Policy 2016
• Corporate Authors:
  Centers for Disease Control and Prevention (U.S.). Office of the Associate Director for Science
• Description:
  The purpose of this policy is to ensure that the Centers for Disease Control and Prevention (CDC) and the Agency for Toxic Substances and Disease Registry (ATSDR) manage public health data and provide access to such data for public use. This policy requires CDC to manage and facilitate public access to its funded public health data and remain compliant with government initiatives promoting open government and transparency. This policy addresses public health data management through all stages of the process and making data accessible.
  
  This policy supersedes the CDC/ATSDR Policy on Releasing and Sharing Data (09/07/2005) and guidance based on it. This policy applies to new collections of public health data proposed after this policy becomes effective. Only new awards, as of the date of issue of this policy and all continuations thereafter, are subject to this policy. Previously established public health data collection systems that continue to collect data after this policy becomes effective should become compliant within three years of the effective date of this policy, or when the data system undergoes substantial revision—whichever comes first. However, this should not involve costly retrofitting of legacy systems. This policy will also ensure that CDC is in compliance with the following; Office of Management and Budget (OMB) memorandum titled “Open Data Policy–Managing Information as an Asset” (OMB M-13-13); Executive Order 13642 titled “Making Open and Machine Readable the New Default for Government Information”; and the Office of Science and Technology Policy (OSTP) memorandum titled “Increasing Access to the Results of Federally Funded Scientific Research” (OSTP Memo).
  
  For purposes of this policy, “public health data” means digitally recorded factual material commonly accepted in the scientific community as a basis for public health findings, conclusions, and implementation. Public health data includes those from research and nonresearch activities. CDC research and nonresearch activities are described in the policy “Distinguishing Public Health Research and Public Health Nonresearch.” Public health data could be quantitative, qualitative, imaging, or genomic output (for example, genome sequencing, arrays, gene expression, etc.). Public health data do not include preliminary analyses, drafts of scientific papers, plans for future research, reports, grantee progress reports, communications with colleagues, or physical objects, such as laboratory notebooks or laboratory specimens.
  
  Category: General Administration: CDC-GA-2005-14. Date of Issue: 04/16/2003, Updated, 09/07/2005, Updated, 1/26/2016.
  
  
• Subjects:
  Access To Information Data Management Datasets As Topic Financing, Government Organizational Policy Peer Review, Research Public Health Publishing Research / Standards Science United States Government Agencies / Organization & Administration

  More +
• Keywords:
  Nonresearch Data Open Science Public Access Research Data
• Series:
  Public Access to CDC-Funded Data   ; CDC-GA-2005-14  
• DOI:
  https://doi.org/10.15620/cdc/257026
• Publisher:
  Centers for Disease Control and Prevention (CDC) (U.S.)
• Document Type:
  Text
• Name as Subject:
  Centers for Disease Control and Prevention (CDC) (U.S.) ; Agency for Toxic Substances and Disease Registry (ATSDR) (U.S.)
• Genre:
  Policy
• Place as Subject:
  United States
• Rights:
  Public Domain
• CIO:
  Office of the Associate Director for Science
• Location:
  North America
• Pages in Document:
  18 pdf pages
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha-512:5b8aae2fab7c530f0816ecaa2b1b04167bde1d6305b738067e341962de0d2840f160ef4533796bba0ad7b7d519cb13a118e277bb99774535bc986f6e0988dcd4
• Download URL:
  https://stacks.cdc.gov/view/cdc/257026/cdc_257026_DS1.pdf
• File Type:
  [PDF - 218.40 KB ]