Barriers and facilitators of work life balance in caregivers of individuals with Parkinson's Disease: an integrative review.

Details

• Personal Author:
  Dickson VV ; Hellmers N
• Description:
  Background: Parkinson's Disease (PD) is a chronic, progressive neurodegenerative illness with an estimate of seven to ten million people diagnosed worldwide. While motor and non-motor symptoms start mild in early stages, over the years the illness worsens and may require the aid of caregivers. Globally, changing family structures and delayed retirements due to professional or financial reasons has placed a limit on number of caregivers available. Family members who become informal caregivers acquire higher one year insurer, medical, prescription and total out of pocket costs. Little is known about the stressors on work-life balance of caregivers who are working. Purpose: The purpose of this integrative review was to explore how caregivers of people with PD experience work-life balance in the family context. Methods: This integrative review utilized standards from Whittemore and Knafl. A literature search of multiple electronic databases included studies from 2015-2019 that explored informal, unpaid caregivers who were relatives of people with PD. Studies that specifically looked at cognitive impairment were excluded. Results: Fifteen studies fit criteria; and all looked at caregiver burden with regard to levels of stress, emotional dimensions, and time spent on assisting with activities of daily living. All studies assessed general working status or socioeconomic status, but few studies further explored how this was perceived to affect work life balance. The tool most commonly used to measure caregiver burden was the Zarit Burden Interview that used only one question related to stress and work. The family system's theory was applied to synthesize cultural differences and the role of caregiving within the context of family life. Females were the higher ratio of caregivers in 13 out of 15 studies. Conclusions/Implications: This integrative review explored the burdens that informal caregivers face including work-life balance and stress. Lack of social or professional support may increase caregiver stress; many caregivers already suffer from financial stress and depression. Future research is needed to explore the multiple roles caregivers have and identify potential interventions to alleviate caregiver burden as well as monitor health status. An advanced tool for measuring work life balance is also warranted. [Description provided by NIOSH]
• Subjects:
  Family Mental Health Nervous System Nervous System Diseases Occupational Health Safety Stress, Psychological
• Keywords:
  Parkinsons disease; Neurological disorders; Families; Work-life balance; Job stress; Psychological effects; Mental health
• ISSN:
  0029-6562
• Document Type:
  Text
• Funding:
  Grant
• Genre:
  Abstract or Summary
• Place as Subject:
  New York ; OSHA Region 2
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Topic:
  Workplace Safety & Health
• Location:
  North America
• Volume:
  69
• Issue:
  3
• NIOSHTIC Number:
  nn:20065829
• Citation:
  Nurs Res 2020 May/Jun; 69(3):E155
• Federal Fiscal Year:
  2020
• Performing Organization:
  Mount Sinai School of Medicine
• Peer Reviewed:
  False
• Start Date:
  20050701
• Source Full Name:
  Nursing Research. Eastern Nursing Research Society 2020 Conference: 32nd ENRS Annual Scientific Sessions, April 2, 2020, virtual event
• End Date:
  20270630
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:2e66f8991a68dd17f2bc0988085d198dbf2581df3ce32a9548d764b5bb333934064c8447a90dc53741e49e4d2cbfe74ee0aee15811d37de789a59c363e4e035d
• Download URL:
  https://stacks.cdc.gov/view/cdc/248801/cdc_248801_DS1.pdf
• File Type:
  [PDF - 125.66 KB ]