Validation of a Quality-of-Life Measure for Deaf or Hard of Hearing Youth

Details

• Personal Author:
  Edwards TC ; Kushalnagar P ; Leng M ; O'Neill-Kemp AM ; Patrick DL ; Schick B ; Sie K ; Skalicky AM ; Topolski TD
• Description:
  Objective. Quality-of-life (QOL) measures targeting youth with hearing loss are useful in population needs assessment, educational placement, and program design and evaluation. This study assesses the cross-sectional validity of the Youth Quality of Life Instrument-Deaf and Hard of Hearing Module (YQOL-DHH). Study Design. Instrument development and cross-sectional survey. Setting. Recruitment through schools, professional organizations, clinics, and programs for youth who are deaf or hard of hearing. Subjects and Methods. Thirty-five candidate items were administered to 230 adolescents aged 11 to 18 years: 49% female, 61% white, 11% mild hearing loss, 20% moderate/moderate-severe, 41% severe/profound, and 28% with cochlear implants. Participants completed individual or group-administered questionnaires by paper and pencil (58%), Web-based English (29%), American Sign Language (ASL) or Pidgin Signed English (PSE) (9%) on DVD, or interviewer-supervised ASL or PSE DVD (4%). The Children's Depression Inventory (CDI-S) was also completed. Factor structure, reliability, construct validity, and respondent burden were assessed. Results. Thirty-two items were retained in the final instrument covering 3 domains: self-acceptance/advocacy (14 items, Cronbach a = 0.84), perceived stigma (8 items, Cronbach a = 0.85), and participation (10 items, Cronbach a = 0.86). QOL was not significantly associated with hearing level. One-week test-retest coefficients were acceptable: self-acceptance/ advocacy (0.70), perceived stigma (0.78), and participation (0.92). As predicted, the total CDI-S score was associated in the appropriate direction (P < .0001) with all YQOL-DHH domains. Time to complete the paper-and-pencil version was 12 minutes. Conclusion. The YQOL-DHH shows good reliability and validity for assessing hearing-specific QOL in adolescents. [Description provided by NIOSH]
• Subjects:
  Adolescent Hearing Loss Hearing Loss, Noise-Induced Occupational Health Safety
• Keywords:
  Adolescent Adolescents Author Keywords: Hearing-impaired Persons Childhood Hearing Loss Cross Sectional Studies Deaf Persons Hearing Disorders Hearing Loss Quality Of Life
• ISSN:
  0194-5998
• Document Type:
  Text
• Funding:
  Grant
• Genre:
  Journal Article
• Place as Subject:
  California ; Colorado ; New York ; OSHA Region 10 ; OSHA Region 2 ; OSHA Region 8 ; OSHA Region 9 ; Washington
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Topic:
  Workplace Safety & Health
• Location:
  North America
• Pages in Document:
  137-145
• Volume:
  145
• Issue:
  1
• NIOSHTIC Number:
  nn:20057078
• Citation:
  Otolaryngol Head Neck Surg 2011 Jul; 145(1):137-145
• Contact Point Address:
  Donald L. Patrick, PhD, MSPH, Department of Health Services, University of Washington, Box 359455, Seattle, WA 98195-9455, USA
• Email:
  donald@u.washington.edu
• Federal Fiscal Year:
  2011
• Performing Organization:
  University of Washington
• Peer Reviewed:
  True
• Start Date:
  20050701
• Source Full Name:
  Otolaryngology - Head and Neck Surgery
• End Date:
  20250630
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:5838a1ff5a1101de183c207cb9219cfc274bcc02b84e92fbe40a4061c1d516fbdd6d0bdd8f462b635af950f19b21db9fb606a3233a3cf04239752a3510510e9e
• Download URL:
  https://stacks.cdc.gov/view/cdc/214539/cdc_214539_DS1.pdf
• File Type:
  [PDF - 108.04 KB ]