Gaps in Survey Data on Cancer in American Indian and Alaska Native Populations: Examination of US Population Surveys, 1960–2010

Details

• Journal Article:
  Preventing Chronic Disease (PCD)
• Personal Author:
  Watanabe-Galloway, Shinobu ; Duran, Tinka ; Stimpson, Jim P. ; Smith, Corey
• Description:
  Introduction ; Population-based data are essential for quantifying the problems and measuring the progress made by comprehensive cancer control programs. However, cancer information specific to the American Indian/Alaska Native (AI/AN) population is not readily available. We identified major population-based surveys conducted in the United States that contain questions related to cancer, documented the AI/AN sample size in these surveys, and identified gaps in the types of cancer-related information these surveys collect. ; Methods ; We conducted an Internet query of US Department of Health and Human Services agency websites and a Medline search to identify population-based surveys conducted in the United States from 1960 through 2010 that contained information about cancer. We used a data extraction form to collect information about the purpose, sample size, data collection methods, and type of information covered in the surveys. ; Results ; Seventeen survey sources met the inclusion criteria. Information on access to and use of cancer treatment, follow-up care, and barriers to receiving timely and quality care was not consistently collected. Estimates specific to the AI/AN population were often lacking because of inadequate AI/AN sample size. For example, 9 national surveys reviewed reported an AI/AN sample size smaller than 500, and 10 had an AI/AN sample percentage less than 1.5%. ; Conclusion ; Continued efforts are needed to increase the overall number of AI/AN participants in these surveys, improve the quality of information on racial/ethnic background, and collect more information on treatment and survivorship.
• Subjects:
  • Adult
  • American Indian or Alaska Native
  • Databases, Factual
  • Female
  • Health Behavior
  • Health Status
  • Health Status Indicators
  • Health Surveys
  • Humans
  • Male
  More +
• Source:
  Prev Chronic Dis. 10.
• ISSN:
  1545-1151
• Document Type:
  Journal Article
• Place as Subject:
  United States
• Volume:
  10
• Download URL:
  https://stacks.cdc.gov/view/cdc/19659/cdc_19659_DS1.pdf
• File Type:
  [PDF - 250.05 KB]
• Collection(s):
  Preventing Chronic Disease
• Main Document Checksum:
  urn:sha-512:cf688fd659a8fed9e0d1f306667df8d091cca9c89f669007654351ddfaf7ba1bd8c418799cc0e4b296130eac044169085de7dcd4f546d61d08c26062b39d61eb