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NPCR and SEER Incidence – U.S. Cancer Statistics Public Use Database Data Standards and Data Dictionary, November 2017 Submission : Diagnosis Years 2005–2015
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Dec. 14, 2018
[PDF-789.37 KB]
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Alternative Title:NPCR Public Use Research Data Standards and Data Dictionary
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Description:The National Program of Cancer Registries (NPCR), administered by the Centers for Disease Control and Prevention (CDC), was established by Congress in 1992. Through cooperative agreements, NPCR supports central cancer registries in 46 states, the District of Columbia, Puerto Rico, U.S. Pacific Island Jurisdictions, and the U.S. Virgin Islands (see map below).
The Surveillance, Epidemiology, and End Results (SEER) Program, administered by the National Cancer Institute (NCI), has been funded since 1973 as a result of the National Cancer Act of 1971. SEER collects reportable cancer cases from 20 U.S. geographic areas, including 5 states (see map below). Together, CDC’s NPCR and NCI’s SEER Program cover the entire United States population. These combined data are the official source of federal statistics on cancer incidence and are referred to as the U.S. Cancer Statistics.
The cancer registries funded by CDC and NCI routinely collect data on patient demographics, primary tumor site, tumor morphology, stage at diagnosis, first course of treatment, and outcomes. Medical facilities such as hospitals, doctor’s offices, pathology laboratories, and other treatment centers send demographic and clinical information related to people with cancer to a central cancer registry, where the information is consolidated. On an annual basis, the central cancer registries submit demographic and clinical information about each cancer case to CDC and/or NCI. None of the information submitted to CDC or NCI contains personally identifiable information about individual patients.
CS293113-C
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npcr-seer-public-use-database-data-dictionary-2005-2015-508.pdf
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