Modernizing CDC’s Practices and Culture for Better Data Sharing, Impact, and Transparency

Details

• Journal Article:
  Preventing Chronic Disease (PCD)
• Personal Author:
  Wiltz, Jennifer L. ; Lee, Brian ; Kaufmann, Rachel ; Carney, Timothy J. ; Davis, Kailah ; Briss, Peter A.
• Description:
  Making full use of data assets can allow institutions to support decisions, protect health, serve customers, and steward resources. Rendering data open to examination while protecting privacy and confidentiality may also enhance trust (1). Public health, research, and publication communities play key roles in data modernization through their work, partnerships, and leadership.
  
  At the federal level, a comprehensive Federal Data Strategy has been developed that provides a unified approach to data management, use, and sharing. Additionally, the Foundations for Evidence-Based Policymaking Act and the Presidential Memorandum on scientific integrity and evidence-based policymaking emphasize using data and evidence to inform decision making.
  
  Government, including the Centers for Disease Control and Prevention (CDC), has embraced these changes. Work on this topic aligns with the larger CDC Moving Forward initiative and supports efforts to share science and data faster, translate findings into evidence-based policy, prioritize communications, promote results-based partnerships, and develop a prepared workforce — all to enhance trust and improve our impact on the lives of Americans and people around the world.
  
  This article presents work that our organization, the National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) at the CDC, and CDC more generally have been doing to make data assets more broadly available. This article suggests data practices based on literature and CDC NCCDPHP experiences that can be valuable to the field, presents use cases and provides selected tools and supports, and promotes a culture that encourages good data practices. While our work will not apply seamlessly to all organizations and contexts, we are hopeful that lessons can be learned that might deserve broader application by the public health and scientific communities.
  
  
• Subjects:
  Humans Information Dissemination
• Source:
  Prev Chronic Dis. 2024; 21
• DOI:
  http://dx.doi.org/10.5888/pcd21.230200
• ISSN:
  1545-1151
• Pubmed ID:
  38512778
• Pubmed Central ID:
  PMC10962273
• Document Type:
  Journal Article
• Name as Subject:
  CDC Moving Forward initiative. ; Centers for Disease Control and Prevention (U.S.) ; National Center for Chronic Disease Prevention and Health Promotion (U.S.) ; CDC Moving Forward initiative. ; Centers for Disease Control and Prevention (U.S.) ; National Center for Chronic Disease Prevention and Health Promotion (U.S.)
• Genre:
  Essay
• Place as Subject:
  United States
• Volume:
  21
• Collection(s):
  Preventing Chronic Disease
• Main Document Checksum:
  urn:sha-512:de78deb478fed0bef0fa1e74433a94bd1a041b52e3c40127e78762e8845ff637238360b2179b97195c1b3076b600e0da13f4496489971c47220f50760621d046
• Download URL:
  https://stacks.cdc.gov/view/cdc/153442/cdc_153442_DS1.pdf
• File Type:
  [PDF - 448.58 KB ]