State Immunization Information System Laws—Demographic Data Collection
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Dec. 19, 2022
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Description:Immunization information systems (IIS), or vaccine registries, are “confidential, population-based, computerized databases that record all immunization doses administered by participating providers to persons residing within a given geopolitical area.” In general, when healthcare providers administer a vaccine, they enter information about the patient and the vaccine into the medical record and report to an IIS database that a health department administers. Providers, schools, and other entities can access information in the database to get accurate information about an individual patient’s vaccination status. Population-level data can also be used to track vaccination rates in communities and may be shared with other agencies.
State laws establish the standards for IIS. Many laws require the collection or reporting of data about vaccine recipients, including demographic data. Demographic data are the characteristics of individuals within a population, such as age, race, sex, pregnancy status, employment status, or occupation. Demographic data, or sociodemographic data, help identify populations that experience disproportionate vaccination rates5 and may help provide indicators of the social, environmental, economic, and other
conditions in which those populations live.
The Centers for Disease Control and Prevention’s (CDC’s) Public Health Law Program (PHLP)—within the Center for State, Tribal, Local, and Territorial Support—assessed state statutes and regulations (collectively referred to as “laws”) governing IIS. This assessment builds on a study conducted by CDC’s Immunization Information Systems Support Branch, through the Public Health Informatics Institute, and published in the Journal of Public Health Management & Practice in 2015. PHLP collected the laws examined for the current assessment in 2020. This assessment did not include policies or other materials produced by health departments, such as websites or forms. Each section of the menu below provides examples of state laws on IIS addressing the collection of demographic data. The appendices provide data on laws from all jurisdictions collected in the 2020 assessment. PHLP plans to release menus about other aspects of state IIS laws in the future.
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IIS_Sociodemo.pdf
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