The future is now : First World Congress on Spina Bifida Research and Care : March 15-18, 2009, Orlando, Florida
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The future is now : First World Congress on Spina Bifida Research and Care : March 15-18, 2009, Orlando, Florida

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  • English

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    • Alternative Title:
      First World Congress on Spina Bifida Research and Care
    • Description:
      The First World Congress on Spina Bifida Research and Care took place in March 2009 in Orlando, Florida. During this landmark meeting, researchers and clinicians from around the world gathered together to discuss clinical and basic science research aimed at improving the care of individuals with Spina Bifida. The roots of this meeting began in May 2003 in Washington, DC when over 100 experts met to discuss the development of a research agenda for evidence-based practice in Spina Bifida. The proceedings from this meeting were published by the Centers for Disease Control and Prevention (CDC) in what is now known as the Green Book. Following the Evidence-Based Research in Spina Bifida meeting in 2004, the wheels were put into motion for the First World Congress. Members of the Professional Advisory Council (PAC) of the Spina Bifida Associa- tion (SBA) recruited several leading researchers in their respective fields to form the Program Planning Committee. This group worked diligently over several years to put this landmark conference together. The meeting was a tremendous success; more than 350 individuals from 30 countries attended. Over the course of three days, presentations included keynote talks, multidisciplinary panel discussions, and breakout sessions in eight separate disciplines including urology, neurosurgery, neuropsychology, orthopedics, developmental pediatrics, epidemiology/genetics/public health, transition, and nursing/allied health. A lifetime achievement award was presented to David McLone, MD. The format of the World Congress allowed further cross fertilization between individuals from numerous specialties and different research backgrounds to foster new collaborative research ideas for the future. This publication summarizes the information from the plenary talks and abstract presentations from the First World Congress. Additional detailed information from the meeting can also be found on the First World Congress Web site (

      Funding for this conference was made possible in part by grant number 1R13SH017978-01 from the Agency for Healthcare Research and Quality (AHRQ), award number R13NS065517 from the National Institute of Neurological Disorders and Stroke, National Institutes of Health (NIH), and grant number 5U59DD000318-02 from the Centers for Disease Control and Prevention (CDC).

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