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  1. Socioecologic Factors as Predictors of Readiness for Self-Management and Transition, Medication Adherence, and Health Care Utilization Among Adolescents and Young Adults With Chronic Kidney Disease
    Personal Author:
    Javalkar, Karina; Fenton, Nicole; Cohen, Sarah; Ferris, Maria;
    Published:
    Jul 10 2014
    Source:
    Prev Chronic Dis. 11.
    Description:
    Introduction : The objective of our study was to determine the socioecologic factors that predict readiness for self-management and transition from pediatric to adult health care services, adherence to taking medications, and health care utilization ...
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  2. Changing mortality patterns, health services utilization, and health care expenditures; United States, 1978-2003
    Personal Author:
    Rice, Dorothy P.
    Corporate Author:
    National Center for Health Statistics (U.S.)
    Published:
    September 1983
    Series:
    Vital and health statistics. Series 3, Analytical and epidemiological studies ; no. 23
    DHHS publication ; no. (PHS) 83-1407
    Description:
    The projected effect of changes in mortality patterns on the future population size_and population age distribution is examined. An assumption of declining mortality trends implies an increased aging of the population. The potential effects of an agi...
    File Type:
    Filetype[PDF - 3.94 MB]
  3. Longitudinal data collection for sickle cell disease in California : history, goals and challenges
    Personal Author:
    Paulukonis, Susan T.; Raider, Faith; Hulihan, Mary M.;
    Corporate Author:
    Public Health Institute (Calif.). California Rare Disease Surveillance Program.; Public Health Institute (Calif.). California Environmental Health Trackin Program.; National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Blood Disorders.; Pfizer, Inc.; Biogen, Inc.; CDC Foundation.;
    Published:
    December 2015
    Description:
    Sickle cell disease (SCD) is the most common severe genetid disease. It impacts approximately 7,000 people in California and nearly 90,000 in the U.S. And yet remarkably little is known about the population impacted by SCD as a whole. Only recently h...
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    Filetype[PDF - 922.47 KB]
  4. The health system impact of false positive newborn screening results for medium-chain acyl-CoA dehydrogenase deficiency: a cohort study
    Personal Author:
    Karaceper, Maria D.; Chakraborty, Pranesh; Coyle, Doug; Wilson, Kumanan; Kronick, Jonathan B.; Hawken, Steven; Davies, Christine; Brownell, Marni; Dodds, Linda; Feigenbaum, Annette; Fell, Deshayne B.; Grosse, Scott D.; Guttmann, Astrid; Laberge, Anne-Marie; Mhanni, Aizeddin; Miller, Fiona A.; Mitchell, John J.; Nakhla, Meranda; Prasad, Chitra; Rockman-Greenberg, Cheryl; Sparkes, Rebecca; Wilson, Brenda J.; Potter, Beth K.;
    Corporate Author:
    on behalf of the Canadian Inherited Metabolic Diseases Research Network
    Published:
    Feb 03 2016
    Source:
    Orphanet J Rare Dis. 11.
    Description:
    Background : There is no consensus in the literature regarding the impact of false positive newborn screening results on early health care utilization patterns. We evaluated the impact of false positive newborn screening results for medium-chain acyl...
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    Filetype[PDF - 617.15 KB]
  5. Hospitalizations and Associated Costs in a Population-Based Study of Children with Down Syndrome Born in Florida
    Personal Author:
    Dawson, April; Cassell, Cynthia H.; Oster, Matthew E.; Olney, Richard S.; Tanner, Jean Paul; Kirby, Russell S.; Correia, Jane; Grosse, Scott D.;
    Published:
    Aug 13 2014
    Source:
    Birth Defects Res A Clin Mol Teratol. 100(11):826-836.
    Description:
    Background : Our objective was to examine differences in hospital resource utilization for children with Down syndrome by age and the presence of other birth defects, particularly severe and non-severe congenital heart defects (CHDs). : Methods : Thi...
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    Filetype[PDF - 460.21 KB]