Participation in survey research among mothers with a recent live birth: A comparison of mothers with living versus deceased infants – Findings from the Pregnancy Risk Assessment Monitoring System, 2016–2019

Details

• Alternative Title:
  Paediatr Perinat Epidemiol
• Personal Author:
  Kortsmit, Katherine ; Shulman, Holly ; Smith, Ruben A. ; Shapiro-Mendoza, Carrie K. ; Parks, Sharyn E. ; Folger, Suzanne ; Whiteman, Maura ; Harrison, Leslie ; Cox, Shanna ; Christiansen-Lindquist, Lauren ; Barfield, Wanda D. ; Warner, Lee
• Description:
  Background:
  
  Despite high infant mortality rates in the United States relative to other developed countries, little is known about survey participation among mothers of deceased infants.
  
  Objective:
  
  To assess differences in survey response, contact and cooperation rates for mothers of deceased versus. living infants at the time of survey mailing (approximately 2–6 months postpartum), overall and by select maternal and infant characteristics.
  
  Methods:
  
  We analysed 2016–2019 data for 50 sites from the Pregnancy Risk Assessment Monitoring System (PRAMS), a site-specific, population-based surveillance system of mothers with a recent live birth. We assessed differences in survey participation between mothers of deceased and living infants. Using American Association for Public Opinion Research (AAPOR) standard definitions and terminology, we calculated proportions of mothers who participated and were successfully contacted among sampled mothers (weighted response and contact rates, respectively), and who participated among contacted mothers (weighted cooperation rate). We then constructed multivariable survey-weighted logistic regression models to examine the adjusted association between infant vital status and weighted response, contact and cooperation rates, within strata of maternal and infant characteristics.
  
  Results:
  
  Among sampled mothers, 0.3% (weighted percentage, n = 2795) of infants had records indicating they were deceased at the time of survey mailing and 99.7% (weighted percentage, n = 344,379) did not. Mothers of deceased infants had lower unadjusted weighted response (48.3% vs. 56.2%), contact (67.9% vs. 74.3%) and co-operation rates (71.1% vs. 75.6%). However, after adjusting for covariates, differences in survey participation by infant vital status were reduced.
  
  Conclusions:
  
  After covariate adjustment, differences in PRAMS participation rates were attenuated. However, participation rates among mothers of deceased infants remain two to four percentage points lower compared with mothers of living infants. Strategies to increase PRAMS participation could inform knowledge about experiences and behaviours before, during and shortly after pregnancy to help reduce infant mortality.
  
  
• Keywords:
  Female Humans Infant Infant Mortality Live Birth Mothers Population Surveillance PRAMS Pregnancy Response Rates Risk Assessment Survey Participation Surveys And Questionnaires United States

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• Source:
  Paediatr Perinat Epidemiol. 36(6):827-838
• Pubmed ID:
  35437839
• Pubmed Central ID:
  PMC10044386
• Document Type:
  Journal Article
• Funding:
  CC999999/ImCDC/Intramural CDC HHSUnited States/
• Volume:
  36
• Issue:
  6
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:1d45bdc2f3ee5712a75af396e15fa2827d5974e2c5d56663810474fd6d99c869
• Download URL:
  https://stacks.cdc.gov/view/cdc/126306/cdc_126306_DS1.pdf
• File Type:
  [PDF - 313.76 KB ]