Race and ethnicity data in the cardiac arrest registry to enhance survival: Insights from medicare self-reported data

Details

• Alternative Title:
  Resuscitation
• Personal Author:
  Chan, Paul S. ; Merritt, Robert ; Chang, Anping ; Girotra, Saket ; Kotini-Shah, Pavitra ; Al-Araji, Rabab ; McNally, Bryan
• Description:
  Background:
  
  For out-of-hospital cardiac arrest (OHCA), assignment of race/ethnicity data can be challenging. Validation of race/ethnicity in registry data with patients’ self-reported race/ethnicity would provide insights regarding misclassification.
  
  Methods:
  
  Using recently linked 2013–2019 Cardiac Arrest Registry to Enhance Survival (CARES) data with Medicare files, we examined the concordance of race/ethnicity in CARES with self-reported race/ethnicity in Medicare. Among patients with unknown race/ethnicity in CARES, race/ethnicity data from Medicare files were reported.
  
  Results:
  
  Of 26,875 patients in the linked data, 5757 (21.4%) had unknown race/ethnicity in CARES. Of the remaining 21,118 patients, 14,284 (67.6%) were identified in CARES as non-Hispanic White, 4771 (22.6%) as non-Hispanic Black, 1213 (5.7%) as Hispanic, 760 (3.6%) as Asian or Pacific Islander, and 90 (0.4%) as American Indian or Alaskan Native. The concordance rate for race/ethnicity between CARES and Medicare was 93.4% for patients reported as non-Hispanic White in CARES, 89.1% for non-Hispanic Blacks, 74.6% for Hispanics, 69.6% for Asians and Pacific Islanders, and 37.8% for American Indian or Alaskan Natives. For the 5757 patients with unknown race/ethnicity in CARES, 3973 (69.0%) self-reported in Medicare as non-Hispanic White, 617 (10.7%) as non-Hispanic Black, 425 (7.4%) as Hispanic, 491 (8.5%) as Asian or Pacific Islander, and 52 (0.9%) as American Indian or Alaskan Native. Race/ethnicity remained unknown in 199 (3.5%) of patients.
  
  Conclusion:
  
  Race/ethnicity in CARES was highly concordant with self-reported race/ethnicity in Medicare, especially for non-Hispanic White and Black individuals. For patients with unknown race/ethnicity data in CARES, the vast majority were of White race.
  
  
• Subjects:
  Aged Ethnicity Heart Arrest Humans Medicare Registries Self Report United States White
• Keywords:
  Accuracy Concordance Race
• Source:
  Resuscitation. 180:64-67
• Pubmed ID:
  36156280
• Pubmed Central ID:
  PMC10030374
• Document Type:
  Journal Article
• Funding:
  CC999999/ImCDC/Intramural CDC HHSUnited States/ ; R01 HL160734/HL/NHLBI NIH HHSUnited States/ ; R56 HL158803/HL/NHLBI NIH HHSUnited States/
• Volume:
  180
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha-512:b21cdd10521d40f228737409b09c1e9da1ac1f52b27dce5f1003b14b260a2c9be18d5eeedca18c4140e76db27a904488f761520b8ac3ba02de342d9955f96cad
• Download URL:
  https://stacks.cdc.gov/view/cdc/126023/cdc_126023_DS1.pdf
• File Type:
  [PDF - 52.87 KB ]