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NCHS staff manual on confidentiality
  • Published Date:
    2004
Filetype[PDF - 342.49 KB]


Details:
  • Corporate Authors:
    National Center for Health Statistics (U.S.)
  • Description:
    Foreword -- 1. Introduction -- -- 2. Legislative and Regulatory Background -- 2.1. Section308(d) of the Public Health Service Act -- 2.2. Privacy Act of 1974 -- 2.3. Confidential Information Protection and Statistical Efficiency Act -- 2.4. Freedom of Information Act -- 2.5. Federal law governing federal employees' behavior -- -- 3. Definitions -- -- 4. Employee Responsibilities -- 4.1. Division and office directors -- 4.2. Confidentiality officer -- 4.3. Supervisors' responsibilities -- 4.4. Individual federal employee's responsibilities -- 4.5. Contractors' and agents' responsibilities -- 4.6. Collaborator's responsibilities -- 4.7. Administrative officer's responsibilities -- -- 5. NCHS Policies on Consent and Assurances of Confidentiality -- 5.1. Consent -- 5.2. Assurances of confidentiality -- 5.3. Responsibility for formal assurances of confidentiality -- 5.4. Data collected directly from individuals or establishments -- 5.5. Data collected from another organization -- 5.6. Data collected over the telephone -- 5.7. Repository of assurances -- -- 6. Treatment of Requests for Information under Freedom of Information Act -- -- 7. The Protection of Confidential Records and Data Systems -- 7.1. Physical protection of confidential records -- 7.2. Automated data processing systems security general -- -- 8. Authorized Disclosures -- -- 8.1. Disclosure to the Parent Locator Service -- 8.2. Disclosures permitted by Section 308(d) of the Public Health Service Act -- 8.3. Disclosures within NCHS -- 8.4. Disclosures within the department -- 8.5 transfers of data to other departments of the federal government -- 8.6. Special cooperative or contractual arrangements -- -- 9. Avoiding Inadvertent Disclosures Through Release of Microdata -- 9.1. Problem -- 9.2. Rule -- 9.3 Restricted access to microdata files with identifiable data -- -- -- -- 10. Avoiding Inadvertent Disclosures in Published Tabular Data -- 10.1. Types of disclosure -- 10.2. Problem -- 10.3. Special guidelines for avoiding disclosure -- 10.4. Evaluating a disclosure problem -- 10.5. Measures to avoid disclosure -- -- 11.Avoiding Disclosure in Other Types of Published Information -- -- Appendix A. Requirements relating to confidentiality and privacy in data collection and data processing contracts -- Appendix B. NCHS nondisclosure affidavit for federal employees -- Appendix C.NCHS nondisclosure affidavit for contractors -- Appendix D. Confidentiality, security, and related contact persons

    "The NCHS Staff Manual on Confidentiality was originally published in July 1978 and reprinted in April 1980 and in August 1997. It was reissued in earlier years mainly to inform staff of changes in laws and regulations. In view of the many changes in technologies related to data handling and dissemination that have taken place in recent years, new procedures and policies have been developed requiring an extensive revision of the Manual. The confidentiality of records is a matter of primary concern to the National Center for Health Statistics (NCHS). In order to elicit health information from the American people and from the health care providers through our surveys, we must be able to assure them that this information will be protected from the eyes and ears of all unauthorized persons. This means that we must have strong laws enabling us to protect these records, and that we must establish and follow procedures to give them such protection. This Manual states the Center's policies that implement Federal law and ensure that all confidential information will be fully protected. It should be viewed in unison with the NCHS data release policies addressing access to data and NCHS Research Ethics Review Board Requirements. The NCHS Director retains the authority to allow exceptions to policies contained in this manual where there are unique or special circumstances." - p. [ii]

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