Results from a state and territorial survey about updating the 2013 CDC guidelines for investigating cancer clusters
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Results from a state and territorial survey about updating the 2013 CDC guidelines for investigating cancer clusters

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      In federal fiscal (FY) year 2019, Congress appropriated funding for the Centers for Disease Control and Prevention (CDC)/Agency for Toxic Substances and Disease Registry (ATSDR) to update the 2013 Guidelines “Investigating Suspected Cancer Clusters and Responding to Community Concerns: Guidelines from CDC and the Council of State and Territorial Epidemiologists” (hereafter referred to as 2013 Guidelines). To update the 2013 Guidelines, CDC sought input from the public; conducted literature reviews and an environmental media scan; held subject matter expert discussions; and gathered information from state, tribal, local, and territorial (STLT) public health agencies. This report summarizes results from a survey of STLT public health agencies.

      In November 2020, following approval for information collection on October 20, 2020 (OMB Control No. 0920-0879), CDC/ATSDR sent STLT public health agencies a survey asking about strengths and weaknesses of the 2013 Guidelines, suggested revisions to the 2013 Guidelines, and facilitators and barriers for effectively addressing cancer cluster inquiries. All 50 states, the District of Columbia, and 2 U.S. territories completed the survey for a state response rate of 100% and overall response rate of 90%.

      The primary findings from the survey are included in this report. Results reflect many strengths and areas for improvement for consideration when updating the 2013 Guidelines.

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