Details:

Alternative Title:
Med Care
Personal Author:
Poger, JM ; Mayer, V ; Duru, OK ; Nauman, B ; Holderness, H ; ... More +
Poger, JM ; Mayer, V ; Duru, OK ; Nauman, B ; Holderness, H ; Warren, N ; Vasquez, C ; Bibi, S ; Rasmussen-Torvik, LJ ; Hosseinian, Z ; Shi, L ; Wallace, J ; Goytia, CN ; Horowitz, CR ; Kraschnewski, JL ; Less -
Description:
Background: Stakeholders (i.e., patients, policy makers, clinicians, advocacy groups, health system leaders, payers and others) offer critical input at various stages in the research continuum, and their contributions are increasingly recognized as an important component of effective translational research. Natural experiments in particular may benefit from stakeholder feedback in addressing real world issues and providing insight into future policy decisions, though best practices for the engagement of stakeholders in observational studies are limited in the literature. Methods: The Natural Experiments for Translation in Diabetes 2.0 (NEXT-D2) network utilizes rigorous methods to evaluate natural experiments in health policy and program delivery with a focus on diabetes-related outcomes. Each of the eight partnering institutions incorporates stakeholder engagement throughout multiple study phases to enhance patient-centeredness of results. NEXT-D2 dedicates a committee to Engagement for resource sharing, enhancing engagement approaches, and advancing network-wide engagement activities. Key stakeholder engagement activities include Study Meetings, Proposal Development, Trainings & Educational Opportunities, Data Analysis, and Results Dissemination. Network-wide patient-centered resources and multimedia have also been developed through the broad expertise of each site’s stakeholder group. Conclusions: This collaboration has created a continuous feedback loop wherein site-level engagement approaches are informed via the network and network-level engagement efforts are shaped by individual sites. Emerging best practices include: incorporating stakeholders in multiple ways throughout the research, building on previous relationships with stakeholders, enhancing capacity through stakeholder and investigator training, involving stakeholders in refining outcome choices and understanding the meaning of variables, and recognizing the power of stakeholders in maximizing dissemination.
Subject:
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Biomedical Research
Diabetes Mellitus
Health Services Research
Humans
Information Dissemination
Stakeholder Participation
Translational Medical Research

Source:
Med Care. 58(Suppl 6 1):S66-S74 ;
Pubmed ID:
32412955
Pubmed Central ID:
PMC7398633
Document Type:
Journal Article ;
Funding:
U18 DP006140/DP/NCCDPHP CDC HHS/United States ; U18DP006140/ACL/ACL HHS/United States ;
U18 DP006140/DP/NCCDPHP CDC HHS/United States ; U18DP006140/ACL/ACL HHS/United States ; Less -
Collection(s):
CDC Public Access
Main Document Checksum:
[+]
urn:sha256:e9da1114cc2211f32d27580f322f2a87caa2326bece03ffb5004203aada4aa8e
File Type:

Supporting Files

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  	nihms-1059529.nxml	xml

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