Actions in Support of Newborn Screening for Critical Congenital Heart Disease — United States, 2011–2018

Details

• Journal Article:
  Morbidity and Mortality Weekly Report (MMWR)
• Personal Author:
  Glidewell, Jill ; Grosse, Scott D. ; Riehle-Colarusso, Tiffany ; Pinto, Nelangi ; Hudson, Jeff ; Daskalov, Rachel ; Gaviglio, Amy ; Darby, Erin ; Singh, Sikha ; Sontag, Marci
• Description:
  In 2011, the U.S. Department of Health and Human Services added critical Congenital heart disease (CCHD), which occurs in two of every 1,000 births, to the list of conditions recommended to states for universal newborn screening (1). Without early detection, infants with CCHD are at risk for substantial morbidity and death in the first weeks and months of life (2). Based on 2007-2013 data, deaths from CCHD and other cardiac causes in infants aged <6 months significantly declined in infants born in eight states after they had fully implemented mandated newborn CCHD screening policies by June 2013 (3). CDC collaborated with the American Academy of Pediatrics (AAP) and the Association of Public Health Laboratories' Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs) to update a 2015 report (4) on states' actions toward adopting and implementing policies supporting CCHD newborn screening. In 2018, all 50 states and the District of Columbia (DC) had implemented CCHD screening policies, and, with one exception, all states mandated that screening be done (California mandates that screening be offered). However, not all states had data systems in place for tracking all screening results and outcomes. Ongoing evaluation activities, which rely on screening data, could help identify program improvement opportunities and monitor the impact of early identification of CCHD.
• Subjects:
  Full Report Health Policy Heart Defects, Congenital Humans Infant, Newborn Neonatal Screening
• Source:
  MMWR Morbidity Mortal Weekly Rep. 68(5):107-111
• Series:
  Weekly Report: Morbidity and Mortality Weekly Report (MMWR)
• DOI:
  http://dx.doi.org/10.15585/mmwr.mm6805a3
• ISSN:
  0149-2195 (print) ; 1545-861X (digital)
• Pubmed ID:
  30730872
• Pubmed Central ID:
  PMC6366677
• Document Type:
  Journal Article
• Place as Subject:
  United States
• Pages in Document:
  5 pdf pages
• Volume:
  68
• Issue:
  5
• Collection(s):
  Morbidity and Mortality Weekly Report (MMWR)
• Main Document Checksum:
  urn:sha-512:921a8cb36374dd9267a65a6bc0a17a23ebd487c6d7ddf04df84920f903fa718a5e944ce45f019579db461b1fda71c80d66c30a34eb83e5100fd7fc97260deead
• Download URL:
  https://stacks.cdc.gov/view/cdc/76148/cdc_76148_DS1.pdf
• File Type:
  [PDF - 121.63 KB ]