Functional limitations and educational needs among children and adolescents with heart disease

Details

• Alternative Title:
  Congenit Heart Dis
• Personal Author:
  Farr, Sherry L. ; Downing, Karrie F. ; Riehle-Colarusso, Tiffany ; Abarbanell, Ginnie
• Description:
  Objective:
  
  To examine how cognitive and motor limitations in children with heart disease are associated with education and participation in extracurricular activities.
  
  Design:
  
  Using 2009–2010 parent-reported data from the National Survey of Children with Special Health Care Needs (NS-CSHCN), we examined prevalence of five functional limitations (learning/ concentration, communication, self-care, gross motor skills, and fine motor skills) by diagnosed heart disease status using chi-square tests and multivariable logistic regression. Among CSHCN with heart disease, we examined the associations between severity of each functional limitation and missing ≥11 days of school in the past year, receiving special education services, and interference with extracurricular activities.
  
  Results:
  
  CSHCN with heart disease (n = 1,416), compared to CSHCN without (n = 28,385), more commonly had “a lot” of difficulty in the five functional areas (P < .01; adjusted odds ratios: 1.8–3.3). Among CSHCN with heart disease, “a lot” of difficulty with learning/concentration was most common (35%), followed by communication (21%), self-care (14%), gross motor skills (12%), and fine motor skills (10%). Among CSHCN with heart disease, compared to those without, respectively, 27% and 15% missed ≥11 days of school, 45% and 29% received special education services, and 49% and 29% experienced interference with extracurricular activities (P < .01 for all). Level of difficulty with the five functional areas was associated with receipt of special education services and participation in extracurricular activities (P < .001).
  
  Conclusion:
  
  These results support the American Heart Association recommendations to screen children with congenital heart disease for age-appropriate development and provide services when needed.
  
  
• Subjects:
  Adolescent Child Child, Preschool Cross-Sectional Studies Female Follow-Up Studies Health Services Needs And Demand Heart Diseases Humans Incidence Infant Infant, Newborn Male Motor Activity Population Surveillance Retrospective Studies

  More +
• Source:
  Congenit Heart Dis. 13(4):633-639.
• Pubmed ID:
  30033554
• Pubmed Central ID:
  PMC6266870
• Document Type:
  Journal Article
• Funding:
  CC999999/Intramural CDC HHS/United States
• Place as Subject:
  United States
• Volume:
  13
• Issue:
  4
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:5d2f5f384aa36289e539c40c137c136d36c961330926745215936fe87ebf7dff
• Download URL:
  https://stacks.cdc.gov/view/cdc/61225/cdc_61225_DS1.pdf
• File Type:
  [PDF - 148.11 KB ]