Functional limitations and educational needs among children and adolescents with heart disease
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Functional limitations and educational needs among children and adolescents with heart disease

Filetype[PDF-148.11 KB]


  • English
    • Details Supporting Files You May Also Like

    Details:

    • Alternative Title:
      Congenit Heart Dis
    • Personal Author:
    • Description:
      Objective:

      To examine how cognitive and motor limitations in children with heart disease are associated with education and participation in extracurricular activities.

      Design:

      Using 2009–2010 parent-reported data from the National Survey of Children with Special Health Care Needs (NS-CSHCN), we examined prevalence of five functional limitations (learning/ concentration, communication, self-care, gross motor skills, and fine motor skills) by diagnosed heart disease status using chi-square tests and multivariable logistic regression. Among CSHCN with heart disease, we examined the associations between severity of each functional limitation and missing ≥11 days of school in the past year, receiving special education services, and interference with extracurricular activities.

      Results:

      CSHCN with heart disease (n = 1,416), compared to CSHCN without (n = 28,385), more commonly had “a lot” of difficulty in the five functional areas (P < .01; adjusted odds ratios: 1.8–3.3). Among CSHCN with heart disease, “a lot” of difficulty with learning/concentration was most common (35%), followed by communication (21%), self-care (14%), gross motor skills (12%), and fine motor skills (10%). Among CSHCN with heart disease, compared to those without, respectively, 27% and 15% missed ≥11 days of school, 45% and 29% received special education services, and 49% and 29% experienced interference with extracurricular activities (P < .01 for all). Level of difficulty with the five functional areas was associated with receipt of special education services and participation in extracurricular activities (P < .001).

      Conclusion:

      These results support the American Heart Association recommendations to screen children with congenital heart disease for age-appropriate development and provide services when needed.

    • Subject:
    • Source:
      Congenit Heart Dis. 13(4):633-639.
    • Pubmed ID:
      30033554
    • Pubmed Central ID:
      PMC6266870
    • Document Type:
      Journal Article
    • Funding:
      CC999999/Intramural CDC HHS/United States
    • Place as Subject:
      United States
    • Collection(s):
      CDC Public Access
    • Main Document Checksum:
    • File Type:

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