Details:

Alternative Title:
Closing gaps and improving outcomes after NBS through national partnerships ; Closing gaps and improving outcomes through partnerships ; Current practices and expansion of newborn screening ; Family experiences with disorders and screening ; Laboratory matters in NBS ; Laboratory quality assurance for newborn screening tests ; NBS : health impact and return on investment ; Newborn screening : health impact and return on investment ;
Personal Author:
Cuthbert, Carla D. ; Grosse, Scott D. ; Howell, R. Rodney ; Joiner, Shane ; Popovic, Tanya ; ... More +
Cuthbert, Carla D. ; Grosse, Scott D. ; Howell, R. Rodney ; Joiner, Shane ; Popovic, Tanya ; Tait, V. Fan ; Terry, Sharon F. Less -
Corporate Authors:
Centers for Disease Control and Prevention (U.S.), Office of the Associate Director for Communication. ; National Center for Environmental Health (US), Division of Laboratory Sciences., Newborn Screening and Molecular Biology Branch. ; National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention), Division of Blood Disorders., Health Services Research and Evaluation
Centers for Disease Control and Prevention (U.S.), Office of the Associate Director for Communication. ; National Center for Environmental Health (US), Division of Laboratory Sciences., Newborn Screening and Molecular Biology Branch. ; National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention), Division of Blood Disorders., Health Services Research and Evaluation Less -
Description:
In the last five decades, newborn screening has become a well-defined, nationwide prevention program. Each year, more than 4 million newborns in the United States are screened for hearing loss and certain genetic, endocrine, and metabolic disorders. Through early identification and treatment, newborn screening provides an opportunity for significant reductions in morbidity and mortality while reducing health care costs associated with treatment of lifelong debilitating conditions. Technological improvements and partner collaboration have led to the expansion and increased uniformity of screening as well as enhanced laboratory and data systems that provide better surveillance, tracking, and research. Although newborn screening has improved and expanded in recent years, particular challenges remain with laboratory and data collection issues. Many state laboratories are being asked to do more screening with fewer resources, providing a need for innovation in areas such as automation, multiplex and molecular testing, and quality assurance. Improvements are also needed in data systems to track follow-up and management of children with disorders identified through newborn screening. This session of CDC's Public Health Grand Rounds addressed these challenges while discussed effective strategies to meet the promise that newborn screening holds for all children.
Content Notes:
Title from title screen (August 19, 2011).

Streaming video (59 min. : sd., col.).

R. Rodney Howell, MD, Professor of Pediatrics, Miller School of Medicine, University of Miami; Senior Advisor to the Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda Maryland;[ Presentation - Current Practices and Expansion of Newborn Screening]; Sharon Terry, MA, President and Chief Executive Officer, Genetic Alliance [Presentation - Family Experiences with Disorders and Screening]; Carla D. Cuthbert, PhD, Chief, Newborn Screening and Molecular Biology Branch, Division of Laboratory Sciences, National Center for Environmental Health, CDC [Presentation - Laboratory Matters in NBS]; Scott D. Grosse, PhD, Associate Director, Health Services Research and Evaluation, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC [Presentation - NBS: Health Impact and Return on Investment]; V. Fan Tait, MD, FAAP, Associate Executive Director, American Academy of Pediatrics [Presentation - Closing Gaps and Improving Outcomes after NBS through National Partnerships].

Facilitated by: Dr. Tanja Popovic, Scientific Director, Public Health Grand Rounds; Shane Joiner, Communication Manager, Public Health Grand Rounds.

Recorded Thursday, August 18, 2011.

Mode of access: World Wide Web as streaming video (356 MB, total time: 59:34) and as an Acrobat .pdf file (2.95 MB, 68 p.) containing PowerPoint slides for the speakers' talks.

Open-captioned.


Subject:
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Neonatal Screening

Series:
Public health grand rounds ; 2011 August 18
Document Type:
Presentation
Genre:
Lectures ; Webcasts
Lectures ; Webcasts Less -
Collection(s):
Stephen B. Thacker CDC Library collection
Main Document Checksum:
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urn:sha256:556f612b4be62ded218fd9188be7cc25dd7a35150faaff0aabd3f1554fa919fc
File Type:

Supporting Files

• No Additional Files

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