Secondary conditions among males with Duchenne or Becker muscular dystrophy

Latimer, Rebecca; Street, Natalie; Conway, Kristin Caspers; James, Kathy; Cunniff, Christopher; Oleszek, Joyce; Fox, Deborah; Ciafaloni, Emma; Westfield, Christina; Paramsothy, Pangaja

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Secondary conditions among males with Duchenne or Becker muscular dystrophy

Published Date:

Apr 09 2017

Source:

J Child Neurol. 32(7):663-670.

[PDF-632.91 KB]

Details:

Alternative Title:

J Child Neurol

Personal Author:

Latimer, Rebecca ; Street, Natalie ; Conway, Kristin Caspers ; James, Kathy ; Cunniff, Christopher ; ... More ▼

Corporate Authors:

Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR

Description:

Duchenne and Becker muscular dystrophy are X-linked neuromuscular disorders characterized by progressive muscle degeneration. Despite the involvement of multiple systems, secondary conditions among affected males have not been comprehensively described. Two hundred nine caregivers of affected males (aged 3-31 years) identified by the Muscular Dystrophy Surveillance, Tracking, and Research Network completed a mailed survey that included questions about secondary conditions impacting multiple body functions. The 5 most commonly reported conditions in males with Duchenne were cognitive deficits (38.4%), constipation (31.7%), anxiety (29.3%), depression (27.4%), and obesity (19.5%). Higher frequencies of anxiety, depression, and kidney stones were found among nonambulatory males compared to ambulatory males. Attention-deficit hyperactivity disorder (ADHD) was more common in ambulatory than nonambulatory males. These data support clinical care recommendations for monitoring of patients with Duchenne or Becker muscular dystrophy by a multidisciplinary team to prevent and treat conditions that may be secondary to the diagnosis.

Subject:

[+]

Pubmed ID:

28393671

Pubmed Central ID:

PMC5502756

Document Type:

Journal Article

Funding:

U01 DD001126/DD/NCBDD CDC HHS/United States ; U01 DD000187/DD/NCBDD CDC HHS/United States ; U01 DD001123/DD/NCBDD CDC HHS/United States ; U01DD001123/ACL HHS/United States ; U01 DD000189/DD/NCBDD CDC HHS/United States ; ... More ▼

Collection(s):

CDC Public Access

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Supporting Files:

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Secondary conditions among males with Duchenne or Becker muscular dystrophy

Secondary conditions among males with Duchenne or Becker muscular dystrophy

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