Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research

Pasquali, Sara K.; Jacobs, Jeffrey P.; Farber, Gregory K.; Bertoch, David; Blume, Elizabeth D.; Burns, Kristin M.; Campbell, Robert; Chang, Anthony C.; Chung, Wendy K.; Riehle-Colarusso, Tiffany; Curtis, Lesley H.; Forrest, Christopher B.; Gaynor, William J.; Gaies, Michael G.; Go, Alan S.; Henchey, Paul; Martin, Gerard R.; Pearson, Gail; Pemberton, Victoria L.; Schwartz, Steven M.; Vincent, Robert; Kaltman, Jonathan R.

- Add this to...
- Twitter
- Facebook
- Google Bookmarks
- LinkedIn

Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research

Published Date:

Apr 05 2016

Source:

Circulation. 133(14):1410-1418.

[PDF - 98.31 KB]

Details:

Personal Authors:

Pasquali, Sara K. ; Jacobs, Jeffrey P. ; Farber, Gregory K. ; Bertoch, David ; Blume, Elizabeth D. ; ... More ▼

Keywords:

[+]

Pubmed ID:

27045129

Pubmed Central ID:

PMC4932890

Description:

The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.

Document Type:

Journal Article

Collection(s):

CDC Public Access

Funding:

CC999999/Intramural CDC HHS/United States
U10 HL109737/HL/NHLBI NIH HHS/United States

Supporting Files:

nihms765075.nxml

application/octet-stream

No Related Documents.

You May Also Like:

Case definitions for acute coronary heart disease in epidemiology and clinical research studies: a statement from the AHA Council on Epidemiology and Prevention; AHA Statistics Committee; World Heart Federation Council on Epidemiology and Prevention; the European Society of Cardiology Working Group on Epidemiology and Prevention; Centers for Disease Control and Prevention; and the National Heart, Lung, and Blood Institute

Source:

Circulation. 2003; 108(20):2543-9.

Status:

current

File Type:

[HTML]
Shifting Demographics among Research Project Grant Awardees at the National Heart, Lung, and Blood Institute (NHLBI)

Personal Author:

Charette, Marc F.; Oh, Young S.; Maric-Bilkan, Christine; Scott, Lindsey L.; Wu, Charles C.; Eblen, Matthew; Pearson, Katrina; Tolunay, H. Eser; Galis, Zorina S.;

Published:

Dec 15 2016

Source:

PLoS One. 11(12).

Description:

The present study was initiated because of concerns expressed by NHLBI-funded mid-career investigators regarding perceived difficulties in the renewal of their grant awards. This led us to ask: "Are mid-career investigators experiencing disproportion...

File Type:

[PDF - 3.86 MB]
Pulse Oximetry Screening for Critical Congenital Heart Disease in Planned Out of Hospital Births and the Incidence of Critical Congenital Heart Disease in the Plain Community

Personal Author:

Miller, Kathleen K; Vig, Kara S; Goetz, Elizabeth M; Spicer, Gretchen LM; Yang, Alyssa J; Hokanson, John S;

Published:

Sep 01 2016

Source:

J Perinatol. 36(12):1088-1091.

Description:

Objective : This study evaluated pulse oximetry screening (POS) for critical congenital heart disease (CCHD) in planned out of hospital births with special attention to births in Plain communities (Amish, Mennonite and similar). : Design : Wisconsin ...

File Type:

[PDF - 66.77 KB]
Screening for Critical Congenital Heart Disease: A Matter of Sensitivity

Personal Author:

Oster, Matthew E.; Colarusso, Tiffany; Glidewell, Jill;

Published:

Nov 21 2012

Source:

Pediatr Cardiol. 2012; 34(1):203-204.

File Type:

[PDF - 34.41 KB]
An Integrated Framework for Assessing the Value of Community-Based Prevention: A Report of the Institute of Medicine

Personal Author:

Pronk, Nicolaas P.; Hernandez, Lyla M.; Lawrence, Robert S.;

Published:

2013

Source:

Prev Chronic Dis. 10.

File Type:

[PDF - 203.47 KB]