Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research
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Published Date:Apr 05 2016
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Source:Circulation. 133(14):1410-1418.
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Personal Authors:
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Pubmed ID:27045129
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Pubmed Central ID:PMC4932890
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Description:The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.
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Funding:CC999999/Intramural CDC HHS/United States
U10 HL109737/HL/NHLBI NIH HHS/United States
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