Details:

Alternative Title:
Circulation
Personal Author:
Pasquali, Sara K. ; Jacobs, Jeffrey P. ; Farber, Gregory K. ; Bertoch, David ; Blume, Elizabeth D. ; ... More +
Pasquali, Sara K. ; Jacobs, Jeffrey P. ; Farber, Gregory K. ; Bertoch, David ; Blume, Elizabeth D. ; Burns, Kristin M. ; Campbell, Robert ; Chang, Anthony C. ; Chung, Wendy K. ; Riehle-Colarusso, Tiffany ; Curtis, Lesley H. ; Forrest, Christopher B. ; Gaynor, William J. ; Gaies, Michael G. ; Go, Alan S. ; Henchey, Paul ; Martin, Gerard R. ; Pearson, Gail ; Pemberton, Victoria L. ; Schwartz, Steven M. ; Vincent, Robert ; Kaltman, Jonathan R. Less -
Description:
The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.
Subject:
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Biomedical Research
Clinical Trials As Topic
Databases, Factual
Data Collection
Data Curation
Data Mining
Electronic Health Records
Health Information Systems
Heart Defects, Congenital
Humans
Medical Informatics
Medical Record Linkage
Registries

Source:
Circulation. 133(14):1410-1418
Pubmed ID:
27045129
Pubmed Central ID:
PMC4932890
Document Type:
Journal Article
Funding:
CC999999/Intramural CDC HHS/United States ; U10 HL109737/HL/NHLBI NIH HHS/United States
CC999999/Intramural CDC HHS/United States ; U10 HL109737/HL/NHLBI NIH HHS/United States Less -
Name as Subject:
National Heart, Lung, and Blood Institute (U.S.)
Place as Subject:
United States
Collection(s):
CDC Public Access
Main Document Checksum:
[+]
urn:sha256:04ed6fad1edae50b53ce9fbdacb220837bd05ac57b094703d915f3df4914f7a6
File Type:

Supporting Files

• nihms765075.nxml

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