Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research

Pasquali, Sara K.; Jacobs, Jeffrey P.; Farber, Gregory K.; Bertoch, David; Blume, Elizabeth D.; Burns, Kristin M.; Campbell, Robert; Chang, Anthony C.; Chung, Wendy K.; Riehle-Colarusso, Tiffany; Curtis, Lesley H.; Forrest, Christopher B.; Gaynor, William J.; Gaies, Michael G.; Go, Alan S.; Henchey, Paul; Martin, Gerard R.; Pearson, Gail; Pemberton, Victoria L.; Schwartz, Steven M.; Vincent, Robert; Kaltman, Jonathan R.

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Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research

Published Date:

Apr 05 2016

Source:

Circulation. 133(14):1410-1418

Language:

English

[PDF-98.31 KB]

Details:

Alternative Title:

Circulation

Personal Author:

Pasquali, Sara K. ; Jacobs, Jeffrey P. ; Farber, Gregory K. ; Bertoch, David ; Blume, Elizabeth D. ; ... More ▼

Description:

The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.

Subject:

[+]

Pubmed ID:

27045129

Pubmed Central ID:

PMC4932890

Document Type:

Journal Article

Funding:

CC999999/Intramural CDC HHS/United States ; U10 HL109737/HL/NHLBI NIH HHS/United States ;

Collection(s):

CDC Public Access

Main Document Checksum:

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nihms765075.nxml

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