The First National ALS Registry report summary
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The First National ALS Registry report summary

  • 10/22/2014

Filetype[PDF-172.50 KB]


English

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  • Description:
    The National ALS Registry enables persons with ALS (also known as Lou Gehrig’s disease) to fight back. By signing up, being counted, and answering brief questions about your disease, you can help researchers find answers to critical questions.

    This is the first report to summarize data from the National ALS Registry, which is the only effort to identify all ALS cases among people living in the United States. The report provides information on how many people were living with ALS in the United States from October 19, 2010 through December 31, 2011. Additional annual reports are planned as we gather more data from the Registry.

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