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The First National ALS Registry report summary
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  • Description:
    What is the National ALS Registry? -- Why is this report important? -- What does the report tell us about ALS? -- How did ATSDR get the data in this report? -- How did ATSDR get the data in this report? -- What is ATSDR doing to improve the Registry? -- Where can I get more information about joining the Registry?

    The National ALS Registry enables persons with ALS (also known as Lou Gehrig’s disease) to fight back. By signing up, being counted, and answering brief questions about your disease, you can help researchers find answers to critical questions.

    This is the first report to summarize data from the National ALS Registry, which is the only effort to identify all ALS cases among people living in the United States. The report provides information on how many people were living with ALS in the United States from October 19, 2010 through December 31, 2011. Additional annual reports are planned as we gather more data from the Registry.

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