Welcome to CDC stacks | The National Amyotrophic Lateral Sclerosis (ALS) Registry patient guide - 36645 | Stephen B. Thacker CDC Library collection
Stacks Logo
Advanced Search
Select up to three search categories and corresponding keywords using the fields to the right. Refer to the Help section for more detailed instructions.
 
 
Help
Clear All Simple Search
Advanced Search
The National Amyotrophic Lateral Sclerosis (ALS) Registry patient guide
  • Published Date:
    6/13/12
  • Language:
    English
Filetype[PDF-3.05 MB]


Details:
  • Corporate Authors:
    United States. Agency for Toxic Substances and Disease Registry.
  • Keywords:
  • Description:
    The National ALS Registry is a program to collect, manage, and analyze data about people with ALS. It is important to include as many people with the disease as pos- sible to get the most accurate information.

    Because learning more about ALS is an important step in the battle to defeat it, the Agency for Toxic Substances and Disease Registry (ATSDR) has developed a national registry to gather information from people who are living with ALS. This information can help doctors and scientists learn more as they work toward a cure.

    CS216408-A

    Publication date from document properties.

  • Document Type:
    Pamphlet (or booklet)
  • Collection(s):
    Stephen B. Thacker CDC Library collection
  • Supporting Files:
    No Additional Files
No Related Documents.
You May Also Like:
  1. A National assessment of amyotrophic lateral sclerosis and other chronic neurologic conditions state surveillance programs : a report for the Agency for Toxic Substances and Disease Registry (ATSDR)
    Personal Author:
    Chao, Ed; Simms, Erin;
    Corporate Author:
    Council of State and Territorial Epidemiologists.; United States. Agency for Toxic Substances and Disease Registry.;
    Published:
    June 6, 2009
    Description:
    On October 8, 2008, the President signed the ALS Registry Act (Public Law No. 110- 373) into law. It authorizes the Centers for Disease Control and Prevention (CDC) to establish a national amyotrophic lateral sclerosis (ALS) patient registry to ident...
    File Type:
    Filetype[PDF - 110.06 KB]
  2. A spatial analysis of amyotrophic lateral sclerosis (ALS) cases in the United States and their proximity to multidisciplinary ALS clinics, 2013
    Personal Author:
    Horton, D. Kevin; Graham, Shannon; Punjani, Reshma; Wilt, Grete; Kaye, Wendy; Maginnis, Kimberly; Webb, Lauren; Richman, Judy; Bedlack, Richard; Tessaro, Edward; Mehta, Paul;
    Published:
    Dec 20 2017
    Source:
    Amyotroph Lateral Scler Frontotemporal Degener. 19(1-2):126-133.
    Description:
    Background : Amyotrophic lateral sclerosis (ALS) is a fatal motor neuron disease that typically results in death within 2–5 years of initial symptom onset. Multidisciplinary ALS clinics (MDCs) have been established to provide specialty care to peop...
    File Type:
    Filetype[PDF - 85.48 KB]
  3. Evaluating the completeness of the national ALS registry, United States
    Personal Author:
    KAYE, WENDY E.; WAGNER, LAURIE; WU, RUOMING; MEHTA, PAUL;
    Published:
    Oct 11 2017
    Source:
    Amyotroph Lateral Scler Frontotemporal Degener. 19(1-2):112-117.
    Description:
    Our objective was to evaluate the completeness of the United States National ALS Registry (Registry). We compared persons with ALS who were passively identified by the Registry with those actively identified in the State and Metropolitan Area ALS Sur...
    File Type:
    Filetype[PDF - 78.69 KB]
  4. Summary report : Amyotrophic Lateral Sclerosis and Multiple Sclerosis Surveillance annual meeting : February 26, 2008 : Issues related to developing a national surveillance system and registries for amyotrophic lateral sclerosis and multiple sclerosis
    Corporate Author:
    United States. Agency for Toxic Substances and Disease Registry.
    Published:
    2008
    Description:
    This document has not been revised or edited to conform to agency standards. The findings and conclusions in this report are those of the meeting presenters and attendees and do not necessarily represent the views of the Agency for Toxic Substances a...
    File Type:
    Filetype[PDF - 678.96 KB]
  5. Prevalence of amyotrophic lateral sclerosis — United States, 2012–2013
    Personal Author:
    Mehta, Paul; Kaye, Wendy; Bryan, Leah; Larson, Theodore C.; Copeland, Timothy; Wu, Jennife; Muravov, Oleg; Horton, Kevin;
    Corporate Author:
    United States. Agency for Toxic Substances and Disease Registry.
    Published:
    August 5, 2016
    Series:
    MMWR. Surveillance summaries : Morbidity and mortality weekly report. Surveillance summaries; v. 65, no. SS-8
    Description:
    Problem/Condition: Amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease, is a progressive and fatal neuromuscular disease for which no cure or viable treatment has been identified. ALS, like most noncommunicable diseases, is ...
    File Type:
    Filetype[PDF - 449.78 KB]