South African National Cancer Registry: Effect of withheld data from private health systems on cancer incidence estimates

Details

• Alternative Title:
  S Afr Med J
• Personal Author:
  Singh, E ; Underwood, J M ; Nattey, C ; Babb, C ; Sengayi, M ; Kellett, P
• Description:
  Background
  
  The National Cancer Registry (NCR) was established as a pathology-based cancer reporting system. From 2005 to 2007, private health laboratories withheld cancer reports owing to concerns regarding voluntary sharing of patient data.
  
  Objectives
  
  To estimate the impact of under-reported cancer data from private health laboratories.
  
  Methods
  
  A linear regression analysis was conducted to project expected cancer cases for 2005 – 2007. Differences between actual and projected figures were calculated to estimate percentage under-reporting.
  
  Results
  
  The projected NCR case total varied from 53 407 (3.8% net increase from actual cases reported) in 2005 to 54 823 (3.7% net increase) in 2007. The projected number of reported cases from private laboratories in 2005 was 26 359 (19.7% net increase from actual cases reported), 27 012 (18.8% net increase) in 2006 and 27 666 (28.4% net increase) in 2007.
  
  Conclusion
  
  While private healthcare reporting decreased by 28% from 2005 to 2007, this represented a minimal impact on overall cancer reporting (net decrease of <4%).
  
  
• Subjects:
  Aged Article Electronic Health Records Humans Incidence Neoplasms Registries Retrospective Studies
• Source:
  S Afr Med J. 105(2):107-109.
• Pubmed ID:
  26242527
• Pubmed Central ID:
  PMC4591919
• Document Type:
  Journal Article
• Funding:
  CC999999/Intramural CDC HHS/United States
• Place as Subject:
  South Africa
• Volume:
  105
• Issue:
  2
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:e1528df9eb8542a5b3ab35e9c69cfdbd519316a385aff9271c43e543868e0fc2
• Download URL:
  https://stacks.cdc.gov/view/cdc/34665/cdc_34665_DS1.pdf
• File Type:
  [PDF - 252.52 KB ]