Community Health Workers Support Community-based Participatory Research Ethics:

Details

• Alternative Title:
  J Health Care Poor Underserved
• Personal Author:
  Smith, Selina A. ; Blumenthal, Daniel S.
• Description:
  Ethical principles of community-based participatory research (CBPR)--specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability--stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.
• Keywords:
  African Americans Attitude Of Health Personnel Black Or African American Cancer Disparities Colorectal Cancer Colorectal Neoplasms Community-based Participatory Research Community-Institutional Relations Community Health Workers Early Detection Of Cancer Ethics Female Healthcare Disparities Humans Male Middle Aged Professional Role Translational Research

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• Source:
  J Health Care Poor Underserved. 2013; 23(4 Suppl):77-87
• Pubmed ID:
  23124502
• Pubmed Central ID:
  PMC3586526
• Document Type:
  Journal Article
• Funding:
  U54CA118638/CA/NCI NIH HHSUnited States/ ; U54 MD007588/MD/NIMHD NIH HHSUnited States/ ; U54 CA118638/CA/NCI NIH HHSUnited States/ ; 5U48DP000049/DP/NCCDPHP CDC HHSUnited States/ ; R01 CA166785/CA/NCI NIH HHSUnited States/ ; U48DP001907/DP/NCCDPHP CDC HHSUnited States/ ; U01 CA114652/CA/NCI NIH HHSUnited States/ ; UL1 TR000454/TR/NCATS NIH HHSUnited States/ ; 5UL1RR025008/RR/NCRR NIH HHSUnited States/ ; U48 DP000049-01/DP/NCCDPHP CDC HHSUnited States/ ; UL1 RR025008/RR/NCRR NIH HHSUnited States/ ; 1R01CA166785-01/CA/NCI NIH HHSUnited States/ ; U54 CA118623/CA/NCI NIH HHSUnited States/ ; U48 DP000049/DP/NCCDPHP CDC HHSUnited States/ ; U54 CA118948/CA/NCI NIH HHSUnited States/ ; DP000049-01/DP/NCCDPHP CDC HHSUnited States/ ; U01CA114652/CA/NCI NIH HHSUnited States/ ; U48 DP001907/DP/NCCDPHP CDC HHSUnited States/ ; G12 MD007585/MD/NIMHD NIH HHSUnited States/
• Volume:
  23
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:10acb2acc570235be833f6d01322b55f2c9c447e1d28a1c96d638ad56b921e24
• Download URL:
  https://stacks.cdc.gov/view/cdc/33528/cdc_33528_DS1.pdf
• File Type:
  [PDF - 509.54 KB ]