Long Term Outcomes in Children with Congenital Heart Disease: National Health Interview Survey
Advanced Search
Select up to three search categories and corresponding keywords using the fields to the right. Refer to the Help section for more detailed instructions.

Search our Collections & Repository

All these words:

For very narrow results

This exact word or phrase:

When looking for a specific result

Any of these words:

Best used for discovery & interchangable words

None of these words:

Recommended to be used in conjunction with other fields



Publication Date Range:


Document Data


Document Type:






Clear All

Query Builder

Query box

Clear All

For additional assistance using the Custom Query please check out our Help Page


Long Term Outcomes in Children with Congenital Heart Disease: National Health Interview Survey

Filetype[PDF-490.06 KB]


  • Alternative Title:
    J Pediatr
  • Publisher's site:
  • Description:

    To assess the extent of long-term morbidity in children with congenital heart disease (CHD).

    Study Design

    We used data from the 1997–2011 National Health Interview Survey to study long-term outcomes in children aged 0–17 years with CHD. Parents were asked whether their child was diagnosed with CHD. We assessed comorbidities including autism/autism spectrum disorders (ASD); healthcare utilization including number of emergency room visits; and daily life aspects including number of days of school missed. These outcomes were compared for children with and without reports of CHD using odds ratios and chi-squared statistics.


    Our study included 420 children with and 180,048 children without reports of CHD; with no significant differences in age and sex. The odds of reporting worse health and greater than 10 days of school/daycare missed in the last year were three times as high for children with CHD compared to children without CHD. Children aged 2–17 with CHD were more likely than children without CHD to have had a diagnosis of ASD (crude odds ratio [OR]: 4.6, 95% confidence interval [CI]: 1.9–11.0), or intellectual disability (OR: 9.1, 95% CI: 5.4–15.4). The prevalence of emergency room, home, and doctors' visits were significantly higher in children with CHD compared to those without CHD.


    Reported adverse outcomes were higher in children with congenital heart disease. These findings, particularly those regarding neurodevelopmental outcomes, may be helpful for parents, healthcare providers, and others in assessing the specific needs of children and teenagers with CHD.

  • Pubmed ID:
  • Pubmed Central ID:
  • Document Type:
  • Collection(s):
  • Main Document Checksum:
  • File Type:

You May Also Like

Checkout today's featured content at stacks.cdc.gov