What Does it Mean to be Genomically Literate? National Human Genome Research Institute Meeting Report

Details

• Alternative Title:
  Genet Med
• Personal Author:
  Hurle, Belen ; Citrin, Toby ; Jenkins, Jean F. ; Kaphingst, Kimberly A. ; Lamb, Neil ; Roseman, Jo Ellen ; Bonham, Vence L.
• Description:
  Genomic discoveries will increasingly advance the science of medicine. Limited genomic literacy may adversely impact the public's understanding and use of the power of genetics and genomics in health care and public health. In November 2011, a meeting was held by the National Human Genome Research Institute to examine the challenge of achieving genomic literacy for the general public, from kindergarten to grade 12 to adult education. The role of the media in disseminating scientific messages and in perpetuating or reducing misconceptions was also discussed. Workshop participants agreed that genomic literacy will be achieved only through active engagement between genomics experts and the varied constituencies that comprise the public. This report summarizes the background, content, and outcomes from this meeting, including recommendations for a research agenda to inform decisions about how to advance genomic literacy in our society.
• Subjects:
  Communications Media Delivery Of Health Care Genetic Research Genome, Human Genomics Health Knowledge, Attitudes, Practice Health Literacy Humans National Human Genome Research Institute (U.S.) Public Health Research Schools United States

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• Keywords:
  Genomic Literacy Genomics National Human Genome Research Institute Public Health Genomics
• Source:
  Genet Med. 15(8):658-663
• Pubmed ID:
  23448722
• Pubmed Central ID:
  PMC4115323
• Document Type:
  Journal Article
• Funding:
  R25RR-022703/RR/NCRR NIH HHSUnited States/ ; P30 DK092950/DK/NIDDK NIH HHSUnited States/ ; U54 CA153460/CA/NCI NIH HHSUnited States/ ; P50 CA95815/CA/NCI NIH HHSUnited States/ ; P50 CA095815/CA/NCI NIH HHSUnited States/ ; Z99 HG999999/Intramural NIH HHSUnited States/ ; 8R25OD010981/OD/NIH HHSUnited States/ ; R01 CA168608/CA/NCI NIH HHSUnited States/ ; R25 RR022703/RR/NCRR NIH HHSUnited States/ ; U58 DP0003435/DP/NCCDPHP CDC HHSUnited States/ ; U58 DP003435/DP/NCCDPHP CDC HHSUnited States/ ; 3U54CA153460-03S1/CA/NCI NIH HHSUnited States/ ; R25 OD010981/OD/NIH HHSUnited States/ ; R21 HS020309/HS/AHRQ HHSUnited States/
• Volume:
  15
• Issue:
  8
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:4779b33b9d4061e007419aac3e390db792bf91ee0a95aeb36a9b310eed70be31
• Download URL:
  https://stacks.cdc.gov/view/cdc/30053/cdc_30053_DS1.pdf
• File Type:
  [PDF - 97.35 KB ]