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Summary report : Amyotrophic Lateral Sclerosis and Multiple Sclerosis Surveillance annual meeting : June 24-25, 2009 : Issues related to developing a national surveillance system and registries for amyotrophic lateral sclerosis and multiple sclerosis
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2009
[PDF-1.07 MB]
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Alternative Title:Issues related to developing a national surveillance system and registries for amyotrophic lateral sclerosis and multiple sclerosis
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Description:This document has not been revised or edited to conform to agency standards. The findings and conclusions in this report are those of the meeting presenters and attendees and do not necessarily represent the views of the Agency for Toxic Substances and Disease Registry.
The Centers for Disease Control and Prevention (CDC) and Agency for Toxic Substances and Disease Registry (ATSDR) convened a meeting of experts to discuss the surveillance of Amyotrophic Lateral Sclerosis (ALS). This annual meeting was held on November 3-4, 2010, in Atlanta, Georgia, at the Marriott Century Center Hotel. The meeting participants (listed on Attachment 1) represented federal agency staff and contractors, advocacy groups, individuals with expertise in neurodegenerative disorders, particularly ALS, and a person with ALS.
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