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ATSDR’s Annual Amyotrophic Lateral Sclerosis (ALS) Surveillance Meeting : August 13 – 14, 2014 summary report
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    This document has not been revised or edited to conform to agency standards. The findings and conclusions in this report are those of the meeting presenters and attendees and do not necessarily represent the views of the Agency for Toxic Substances and Disease Registry.

    Because much remains unknown about the causes(s) of Amyotrophic Lateral Sclerosis (ALS), the National ALS Registry was established in 2010 by the Agency for Toxic Substances and Disease Registry (ATSDR) to describe the incidence and prevalence of ALS, to describe the demographics of ALS patients, and to examine the risk factors for the disease. The first report from the Registry was published in CDC’s Morbidity and Mortality Weekly Report (MMWR) on July 25, 2014. The report includes the first-ever prevalence estimates of ALS for the United States (US).

    Each year ATSDR convenes the Annual ALS Surveillance Meeting to bring together leading ALS experts to help shape the Registry. The meeting is designed to update stakeholders on the progress of the Registry, to present the Registry data and its implications, and to discuss strategies to further enhance the Registry for all stakeholders.

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