Registry and Surveillance System for Hemoglobinopathies -- RuSH : strategies from the field : Data collection

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CDC STACKS serves as an archival repository of CDC-published products including scientific findings, journal articles, guidelines, recommendations, or other public health information authored or co-authored by CDC or funded partners. As a repository, CDC STACKS retains documents in their original published format to ensure public access to scientific information.

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Registry and Surveillance System for Hemoglobinopathies -- RuSH : strategies from the field : Data collection

English

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Details:

Alternative Title:

RuSH : strategies from the field
Corporate Authors:

National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Blood Disorders. ; National Heart, Lung, and Blood Institute.

National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Blood Disorders. ; National Heart, Lung, and Blood Institute. Less -
Description:

In 2010, the Registry and Surveillance System for Hemoglobinopathies (RuSH) pilot project was implemented by the Centers for Disease Control and Prevention (CDC) to collect state-specific, population-based data on people with sickle cell disease (SCD) and thalassemia. The 2-year pilot project was supported and conducted in collaboration with the National Institutes of Health’s National Heart, Lung, and Blood Institute (NHLBI).

Overall project goals included determining the number of people with SCD and thalassemia and increasing knowledge and awareness about health care use and outcomes. Seven states were funded to participate in data collection: California, Florida, Georgia, Michigan, New York, North Carolina, and Pennsylvania. Due to the unique nature of the available data sources in each state, a variety of data collection methods were employed.

CS232856A
Subjects:

[+]

Anemia, Sickle Cell Hemoglobinopathies Population Surveillance Registries Thalassemia
Document Type:

Pamphlet (or booklet)
Place as Subject:

United States
Pages in Document:

24 numbered pages
Collection(s):

Stephen B. Thacker CDC Library
Main Document Checksum:

[+]

urn:sha256:7213717f48726ca9e9ed34b48fe8ea61663dee6252091f2306b390d4d9509c90
Download URL:

https://stacks.cdc.gov/view/cdc/25885/cdc_25885_DS1.pdf
File Type:

[PDF-4.05 MB]