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Registry and Surveillance System for Hemoglobinopathies -- RuSH : strategies from the field : Data collection
  • Published Date:
    9/4/12
  • Language:
    English
Filetype[PDF - 4.05 MB]


Details:
  • Corporate Authors:
    National Center on Birth Defects and Developmental Disabilities (Centers for Disease Control and Prevention). Division of Blood Disorders. ; National Heart, Lung, and Blood Institute. ;
  • Description:
    In 2010, the Registry and Surveillance System for Hemoglobinopathies (RuSH) pilot project was implemented by the Centers for Disease Control and Prevention (CDC) to collect state-specific, population-based data on people with sickle cell disease (SCD) and thalassemia. The 2-year pilot project was supported and conducted in collaboration with the National Institutes of Health’s National Heart, Lung, and Blood Institute (NHLBI).

    Overall project goals included determining the number of people with SCD and thalassemia and increasing knowledge and awareness about health care use and outcomes. Seven states were funded to participate in data collection: California, Florida, Georgia, Michigan, New York, North Carolina, and Pennsylvania. Due to the unique nature of the available data sources in each state, a variety of data collection methods were employed.

    CS232856A

  • Supporting Files:
    No Additional Files