From the National to the Local: Issues of Trust and a Model for Community-Academic-Engagement

Details

• Personal Author:
  Agonafer EP ; Alberti PM ; Andress L ; Chinekezi O ; de la Torre D ; Gulliot-Wright S ; Lee M ; Massick S ; Piepenbrink S ; Sutton KM
• Description:
  Inequities in health and health care in the United States have persisted for decades, and the impacts on equity from the COVID-19 pandemic were no exception. In addition to the disproportionate burden of the disease across various populations, the pandemic posed several challenges, which exacerbated these existing inequities. This has undoubtedly contributed to deeply rooted public mistrust in medical research and healthcare delivery, particularly among historically and structurally oppressed populations. In the summer of 2020, given the series of social injustices posed by the pandemic and highly publicized incidents of police brutality, notably the murder of George Floyd, the Association of American Medical Colleges (AAMC) enlisted the help of a national collaborative, the AAMC Collaborative for Health Equity: Act, Research, Generate Evidence (CHARGE) to establish a three-way partnership that would gather and prioritize community perspectives and lived experiences from multiple regions across the US on the role of academic medicals centers (AMCs) in advancing health and social justice. Given physical gathering constraints posed by the pandemic, virtual interviews were conducted with 30 racially and ethnically diverse community members across the country who expressed their views on how medical education, clinical care, and research could or did impact their health experiences. These interviews were framed within the context of the relationship between historically oppressed groups and the COVID-19 vaccine clinical trials underway. From the three-way partnership formed with the AAMC, AAMC CHARGE participants, and 30 community members from racially and ethnically diverse groups, qualitative methods provided lived experiences supporting other literature on the lack of trust between oppressed communities and AMCs. This led to the development of the Principles of Trustworthiness (PoT) Toolkit, which features ten principles inspired by community members' insights into how AMCs can demonstrate they are worthy of their community's trust. In the end, the three-way partnership serves as a successful model for other national medical and health organizations to establish community engaged processes that elicit and prioritize lived experiences describing relationships between AMCs and oppressed communities. [Description provided by NIOSH]
• Subjects:
  Communicable Diseases Community Health Services Occupational Health Safety
• Keywords:
  Author Keywords: Health Equity Community Engagement Community Health COVID-19 Health Care Healthcare Health Equity Partnership SDOH Social Determinants Of Health Social Justice Trustworthiness

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• ISSN:
  2296-2565
• Document Type:
  Text
• Funding:
  Grant
• Genre:
  Journal Article
• Place as Subject:
  California ; Delaware ; District of Columbia ; Ohio ; OSHA Region 3 ; OSHA Region 5 ; OSHA Region 6 ; OSHA Region 9 ; Pennsylvania ; Texas
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Topic:
  Workplace Safety & Health
• Location:
  North America
• Volume:
  11
• NIOSHTIC Number:
  nn:20069933
• Citation:
  Front Public Health 2023 Feb; 11:1068425
• Contact Point Address:
  Olufunmilayo Chinekezi, National Academy of Sciences, Engineering, and Medicine, Washington, DC, United States
• Email:
  ochinekezi@nas.edu
• Federal Fiscal Year:
  2023
• NORA Priority Area:
  Agriculture, Forestry and Fishing
• Performing Organization:
  University of Texas Medical Branch, Galveston
• Peer Reviewed:
  True
• Start Date:
  20210901
• Source Full Name:
  Frontiers in Public Health
• End Date:
  20240831
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:b0f2ef86bd7635ace2e050b91712584b19d67bd009c47adfdec3de8d21d8fac5a6ccf150c791a55fc4c2619e933b14b115e979abe62e4e2ddb1a44cd9ce5b341
• Download URL:
  https://stacks.cdc.gov/view/cdc/208254/cdc_208254_DS1.pdf
• File Type:
  [PDF - 153.04 KB ]