Scleroderma: living with unpredictability

Details

• Personal Author:
  Acorn S ; Joachim G
• Description:
  Every individual with scleroderma is unique. Symptoms vary in severity, duration, and effect on the individual. Many with scleroderma live an unpredictable life, as they struggle to understand the condition and to manage the unpredictable symptoms. Because of rarity of the condition, many nurses know little about scleroderma, its symptoms, and how to manage them. Nurses should equip themselves with information about rare conditions and not shy away from asking individuals about their condition and how best to help them. It is essential for occupational health nurses to appreciate the individuality of the condition and discuss workers' unique symptoms and care needs with them. Equipped with knowledge, caring for clients with scleroderma can be a rewarding experience for both the nurses and the client. In the work setting, the occupational health nurse can provide leadership to assist the individual with scleroderma to live as productive a life as possible. Nurses in all settings, hospital, community, and work, can do much to assist individuals with the management of chronic conditions such as scleroderma. [Description provided by NIOSH]
• Subjects:
  Environmental Health Fibrosis Health Personnel Men Occupational Health Safety Skin Skin Diseases Solvents Women
• Keywords:
  Collagen-fibrils Drugs Environmental-factors Humans Nurses Occupational-health-nursing Organic-solvents Skin-diseases Skin-disorders
• ISSN:
  0891-0162
• Document Type:
  Text
• Funding:
  Grant
• Genre:
  Journal Article
• Place as Subject:
  Illinois ; OSHA Region 4 ; OSHA Region 5 ; Tennessee
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Topic:
  Workplace Safety & Health
• Location:
  North America
• Pages in Document:
  353-357
• Volume:
  51
• Issue:
  8
• NIOSHTIC Number:
  nn:20039372
• Citation:
  AAOHN J 2003 Aug; 51(8):353-357
• CAS Registry Number:
  Benzene (CAS RN 71-43-2) ; Toluene (CAS RN 108-88-3) ; Vinyl chloride (CAS RN 75-01-4)
• Editor(s):
  Wachs JE
• Federal Fiscal Year:
  2003
• Performing Organization:
  University of Illinois at Chicago
• Peer Reviewed:
  True
• Start Date:
  20050701
• Source Full Name:
  AAOHN Journal - American Association of Occupational Health Nurses Journal
• End Date:
  20290630
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:cfbdb0ba039b516cb651cebb7a94218afce1f3aa782738a039b219c34e989d23f24abb10b960a2dc3de777453d1e04fa1827b72e9f7a088fc480767f96a65521
• Download URL:
  https://stacks.cdc.gov/view/cdc/192688/cdc_192688_DS1.pdf
• File Type:
  [PDF - 63.42 KB ]