CDC STACKS serves as an archival repository of CDC-published products including scientific findings, journal articles, guidelines, recommendations, or other public health information authored or co-authored by CDC or funded partners.
As a repository, CDC STACKS retains documents in their original published format to ensure public access to scientific information.
Priorities and recommendations to make ALS a livable disease emanating from the 2024 National Academies of Sciences, Engineering, and Medicine report Living with ALS
-
12 2024
-
-
Source: Ann Neurol. 96(6):1035-1039
Details:
-
Alternative Title:Ann Neurol
-
Personal Author:
-
Description:Amyotrophic lateral sclerosis (ALS) is a relentless, fatal neurodegenerative disease. The progressive loss of voluntary muscle function, diagnostic delays, lack of effective treatments, and challenges accessing multidisciplinary care and resources have tremendous impact on quality of life. The congressionally directed ALS committee of the National Academies of Science, Engineering, and Medicine, in their 2024 report "Living with ALS," recommends critical actions for specific United States stakeholders to make ALS a livable disease over the next decade. This review summarizes the context and recommendations of the report. Advocacy efforts are critical to make these recommendations a reality for the ALS community. ANN NEUROL 2024;96:1035-1039.
-
Subjects:
-
Source:
-
Pubmed ID:39390661
-
Pubmed Central ID:PMC11563851
-
Document Type:
-
Funding:
-
Volume:96
-
Issue:6
-
Collection(s):
-
Main Document Checksum:
-
File Type:
-
Supporting Files:No Additional Files