Details:

• Alternative Title:
  Birth Defects Res
• Personal Author:
  Tepper, Naomi K. ; Chowdhury, Julia ; Moore, Cynthia A. ; Werler, Martha M. ; Mishkin, Kathryn ; ... More +

  Tepper, Naomi K. ; Chowdhury, Julia ; Moore, Cynthia A. ; Werler, Martha M. ; Mishkin, Kathryn ; Reefhuis, Jennita Less -
• Description:
  Background:
  
  Gastroschisis has increased worldwide over several decades; however, there are significant gaps in understanding risk factors for development of the defect, particularly those that might be modifiable. Despite advances in survival, little is known about longer-term outcomes for affected individuals.
  
  Methods:
  
  On April 27– and 28, 2023, the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) and March of Dimes sponsored a meeting entitled “Public Health Priorities for Gastroschisis”. The meeting goals were to review current knowledge on gastroschisis, discuss research gaps, and identify future priorities for public health surveillance, research, and action related to gastroschisis. Meeting participants encompassed a broad range of expertise and experience, including public health, clinical care of individuals with gastroschisis, affected individuals and families, and representatives from professional organizations and federal agencies.
  
  Results:
  
  Several goals were identified for future public health surveillance and research, including focused theory-driven research on risk factors and increased study of longer-term effects of gastroschisis through improved surveillance. Certain public health actions were identified, that which could improve the care of affected individuals, including increased education of providers and enhanced resources for patients and families.
  
  Conclusions:
  
  These efforts may lead to an improved understanding of pathogenesis, risk factors, and outcomes and to improved care throughout the lifespan.
  
  
• Subjects:
  [+]

  Centers For Disease Control And Prevention, U.S. Gastroschisis Health Priorities Humans Public Health United States
• Keywords:
  [+]

  Gastroschisis Research Surveillance
• Source:
  Birth Defects Res. 116(1):e2299
• Pubmed ID:
  38277411
• Pubmed Central ID:
  PMC10983047
• Document Type:
  Journal Article
• Funding:
  CC999999/ImCDC/Intramural CDC HHSUnited States/
• Volume:
  116
• Issue:
  1
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  [+]

  urn:sha-512:0e29653e329f6420218d740c534753d73814bafd5189b6910f3b1859f18333eebd14995a6331bfc7618930b77034be20f7847324db27b07c7249a5f1607a1a34
• File Type:

• Supporting Files:
  No Additional Files