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Description:The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. These patients receive care at Hemophilia Treatment Centers (HTCs) that are part of the US Hemophilia Treatment Center Network (USHTCN), a network of 135 HTCs located throughout the United States and its territories. The HTCs practice a model of care delivery called comprehensive (integrated) care. This care includes specialized prevention, diagnostic, and treatment programs. It also includes familycentered education, research, and support services for patients and families living with bleeding disorders. Congress provides support to the HTCs through the Health Resources and Services Administration and the Centers for Disease Control and Prevention (CDC). CDC sponsors Community Counts, a project with the American Thrombosis & Hemostasis Network and the USHTCN that monitors the complications of bleeding disorders. USHTCN centers that participate in the Community Counts project collect data on common health issues, medical complications, and causes of death that affect people with bleeding disorders.
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