Tips for health care providers on talking with patients who have intellectual and developmental disabilities about COVID-19

Flores, Alina L.; Holt, Sidney; Lynch, Molly McKnight; Squiers, Linda; Walker, Kathleen; Ligon, Jillian

doi:10.1080/17538068.2022.2132011

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Tips for health care providers on talking with patients who have intellectual and developmental disabilities about COVID-19

12 2022
By Flores, Alina L. ; Holt, Sidney ; Lynch, Molly McKnight ; ...
http://dx.doi.org/10.1080/17538068.2022.2132011
Source: J Commun Healthc. 15(4):324-328

[PDF-59.62 KB]

English

Details Supporting Files You May Also Like

Details:

Alternative Title:

J Commun Healthc
Personal Author:

Flores, Alina L. ; Holt, Sidney ; Lynch, Molly McKnight ; Squiers, Linda ; Walker, Kathleen ; ... More +

Flores, Alina L. ; Holt, Sidney ; Lynch, Molly McKnight ; Squiers, Linda ; Walker, Kathleen ; Ligon, Jillian Less -
Description:

Background:

One in four American adults reports having at least one disability. The COVID-19 pandemic has disproportionately impacted people with disabilities and widened already-existing health disparities and inequities. For many people with intellectual and developmental disabilities (IDD), these disparities are compounded by literacy limitations that make it challenging to access, understand, and act upon critical COVID-19 prevention information.

Methods:

Using a design thinking framework, we conducted interviews with 27 caregivers of adults with IDD who also have extreme low literacy (ELL) to assess COVID-19 information needs and recommendations for how health care providers could best provide COVID-19 information. Based on our findings, we developed a draft tip sheet to help health care providers communicate with adults with IDD/ELL about COVID-19. We then tested the tip sheet with six health care providers via a focus group discussion. We refined and finalized the tip sheet based on our focus group findings.

Results:

Caregivers noted the importance of visual aids, repetition, empathy and addressing the person with IDD/ELL directly when discussing COVID-19. Many health care providers indicated that the tip sheet would be most helpful for those with limited experience with patients with IDD/ELL and specific instructions for implementing the tips would be important.

Conclusions:

We developed an evidence-informed tip sheet to facilitate communication between health care providers and adults with IDD/ELL and their caregivers, particularly around COVID-19.
Subjects:

[+]

Adult Child COVID-19 Developmental Disabilities Health Personnel Humans Intellectual Disability Pandemics United States
Keywords:

[+]

Disabilities Health Literacy Intellectual And Developmental Disabilities Low Literacy
Source:

J Commun Healthc. 15(4):324-328
Pubmed ID:

36911901
Pubmed Central ID:

PMC10947989
Document Type:

Journal Article
Funding:

CC999999/ImCDC/Intramural CDC HHSUnited States/
Volume:

15
Issue:

4
Collection(s):

CDC Public Access
Main Document Checksum:

[+]

urn:sha256:e0df5b169539141439a1d35df61f0cd5d25da755a5bbdbbdbe2bb2808958d463
Download URL:

https://stacks.cdc.gov/view/cdc/151759/cdc_151759_DS1.pdf
File Type:

nihms-1971023.nxml

xml

More +