Health Insurance Status and Access to Healthcare Among Young Adults with Congenital Heart Disease: from the Congenital Heart Survey To Recognize Outcomes, Needs and Well-beinG (CH STRONG), 2016–2019

Bolin, Elijah H.; Ali, Mir M.; Farr, Sherry L.; Oster, Matthew E.; Klewer, Scott E.; Thomas, R. Collins; Seckeler, Michael D.; Nembhard, Wendy N.

doi:10.1007/s00246-023-03106-z

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Health Insurance Status and Access to Healthcare Among Young Adults with Congenital Heart Disease: from the Congenital Heart Survey To Recognize Outcomes, Needs and Well-beinG (CH STRONG), 2016–2019

8 2024
By Bolin, Elijah H. ; Ali, Mir M. ; Farr, Sherry L. ; ...
Source: Pediatr Cardiol. 45(6):1308-1315

Public Access Version Available on: August 01, 2025, 12:00 AM

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English

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Details:

Alternative Title:

Pediatr Cardiol
Personal Author:

Bolin, Elijah H. ; Ali, Mir M. ; Farr, Sherry L. ; Oster, Matthew E. ; Klewer, Scott E. ; ... More +

Bolin, Elijah H. ; Ali, Mir M. ; Farr, Sherry L. ; Oster, Matthew E. ; Klewer, Scott E. ; Thomas, R. Collins ; Seckeler, Michael D. ; Nembhard, Wendy N. Less -
Description:

Having health insurance is associated with better access to healthcare and lower rates of comorbidity in the general population, but data are limited on insurance's impact on adults with congenital heart disease (ACHD). The Congenital Heart Survey To Recognize Outcomes, Needs and well-beinG (CH STRONG) was conducted among ACHD in three locations from 2016 to 2019. We performed multivariable logistic regression to determine the associations between health insurance and both access to healthcare and presence of comorbidities. We also compared health insurance and comorbidities among ACHD to similarly-aged individuals in the Behavioral Risk Factor Surveillance System (BRFSS) as a proxy for the general population. Of 1354 CH STRONG respondents, the majority were ≤ 30 years old (83.5%), and 8.8% were uninsured versus 17.7% in the BRFSS (p < 0.01). Compared to insured ACHD, uninsured were less likely to report regular medical care (adjusted odds ratio [aOR] 0.2, 95% confidence interval [CI] 0.1-0.3) and visited an emergency room more often (aOR 1.6, CI 1.0-2.3). Among all ACHD reporting disability, uninsured individuals less frequently received benefits (aOR 0.1, CI 0.0-0.3). Depression was common among uninsured ACHD (22.5%), but insured ACHD had lower rates of depression than insured in the BRFSS (13.3% vs. 22.5%, p < 0.01). In conclusion, rates of insurance were higher among ACHD compared to the general population. Nonetheless, uninsured ACHD inconsistently accessed healthcare and benefits. Further studies are needed to determine if insurance ameliorates the risk of morbidity as ACHD age.
Subjects:

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Adolescent Adult Behavioral Risk Factor Surveillance System Comorbidity Female Health Services Accessibility Heart Defects, Congenital Humans Insurance, Health Insurance Coverage Male Medically Uninsured United States Young Adult
Keywords:

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Congenital Healthcare Utilization Insurance
Source:

Pediatr Cardiol. 45(6):1308-1315
Pubmed ID:

36693998
Pubmed Central ID:

PMC10680444
Document Type:

Journal Article
Funding:

CC999999/ImCDC/Intramural CDC HHSUnited States/ ; U38O2000199/March of Dimes Foundation/

CC999999/ImCDC/Intramural CDC HHSUnited States/ ; U38O2000199/March of Dimes Foundation/ Less -
Volume:

45
Issue:

6
Collection(s):

CDC Public Access
Main Document Checksum:

[+]

urn:sha-512:d0ef707c106fcc3da6cf3f485ec9246c8ac03ebaf305105c6e6bef406f858430a02a611b4a92515b1d93fea282e20db9dd822495d0a8b986ae1b874c7dd102df
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