Trajectories of Self-Management and Independence in Youth with Spina Bifida: Demographic Predictors of Growth

Details

• Alternative Title:
  Child Care Health Dev
• Personal Author:
  Ridosh, Monique M. ; Adams, William ; Magaña, Fabiola ; Sawin, Kathleen J. ; Holmbeck, Grayson N.
• Description:
  Aim:
  
  The purpose of this study was to examine the trajectories of condition and independent living self-management in youth with spina bifida.
  
  Methods:
  
  A diverse sample of adolescents and young adults (AYA) with spina bifida (SB) completed the Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II) across four time points. Parents reported on demographic characteristics including age, sex, race/ethnicity, and family income. Growth in self-management and its subscales (condition and independent living) were estimated using linear mixed effects models as a function of respondents’ demographics.
  
  Results:
  
  This study included 99 respondents age 18 to 27 years old. About half were female (52.5%) and White (52.5%); 15.2% were Black, and about a third were Hispanic/Latino (32.3%). Eighty-seven AYAs (87.9%) had myelomeningocele. The lesion level was 31.3% sacral, 48.5% lumbar, and 18.2% thoracic. A third of the families earned less than 50K. Overall, self-management growth was dependent on age, sex, and race/ethnicity, but not income. Growth in condition self-management depended on sex; only males demonstrated increasing growth (β^=0.11, p < .001). Black participants endorsed higher increasing total and condition self-management when compared to White (β^diff=0.17 and 0.17, respectively, both p < .05) and Hispanic/Latino (β^diff=0.18 and 0.21, respectively, both p = .02) respondents.
  
  Conclusion:
  
  This study provides evidence of differences in growth of self-management by demographic/social determinants of health. Possible reasons for differences are discussed. Predictors of changes in self-management behaviors over time in young adults with SB can identify subgroups in need of further study.
  
  
• Subjects:
  Adolescent Adult Ethnicity Female Humans Male Parents Self-Management Spinal Dysraphism Young Adult
• Source:
  Child Care Health Dev. 49(3):508-517
• Pubmed ID:
  36206540
• Pubmed Central ID:
  PMC10079778
• Document Type:
  Journal Article
• Funding:
  R01 HD048629/HD/NICHD NIH HHSUnited States/ ; U01 DD001240/DD/NCBDD CDC HHSUnited States/ ; R01 NR016235/NR/NINR NIH HHSUnited States/ ; K01 NR018907/NR/NINR NIH HHSUnited States/
• Volume:
  49
• Issue:
  3
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:09592bde368903cd89f0347977c36c0f7edf571269bf66fa1eca9d8768928ca5
• Download URL:
  https://stacks.cdc.gov/view/cdc/126818/cdc_126818_DS1.pdf
• File Type:
  [PDF - 726.95 KB ]