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Claims and registry data analysis plan : Vision & Eye Health Surveillance System

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    The Centers for Disease Control and Prevention (CDC) issued a cooperative agreement with NORC at the University of Chicago (NORC) to establish a national Vision and Eye Health Surveillance System (VEHSS). The VEHSS initiative aims to combine and analyze multiple existing data sources to address knowledge gaps in vision and eye health surveillance. To achieve this, the project team must identify and prioritize available sources of secondary information, define common outcome indicators, analyze and report outcomes from individual data sources, and resolve methods to harmonize or integrate multiple data sources to produce integrated national and state prevalence and service utilization estimates.

    Through partnerships with leading organizations in vision and eye health, NORC and CDC conducted the following major steps to integrate administrative claims databases and electronic health record (EHR) registries for the VEHSS:

    • Step 1. Identify vision and eye health related data in administrative databases and EHR-based registries.

    • Step 2. Summarize characteristics of claims databases and EHR-based registries.

    • Step 3. Identify and define data indicators by developing diagnosis and exam code categories.

    • Step 4. Analyze each claims and registry data source to estimate prevalence rates for data indicators (single-source estimates).

    • Step 5. Identify select sources to include in statistical models which will be used to generate the comprehensive national estimates.

    This document serves as a data analysis guide for claims and registry data used by VEHSS analysts and data providers and may be updated throughout the course of the project. It further details our approach to Steps 1-4. This approach is used for administrative claims databases and the American Academy of Ophthalmology Intelligent Research In Sight (IRIS)® Registry. The objective of this plan is to determine annual treated prevalence rates, defined as the proportion of individuals within the populations represented by each data source who have been treated for or recently diagnosed with vision or eye health disorders. Because this analysis relies on administrative records, it is not representative of individuals who have not been diagnosed or treated (i.e. those who are underserved or uninsured).

    VEHSSClaimsRegistryAnalysisPlan.pdf

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    31 numbered pages
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    urn:sha256:05d690fd4fb70550ce2cf723a5165894ce6eab4beaa18433e7e5494b33f1ca1e
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English
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